Possible peripheral neuropathy

[Benhur1]

Can anyone please help me in treating burning pain to my hands and feet, I have possible nerve issues not been tested yet.

I live in uk, I picked up hot bowl with my hands and burning pain started in my hands and similar in my feet.

This is causing me lot of burning pain and I will be grateful for advice on treating this.

Even though I told my GP about my pain sometimes ago but only referred to nhs specialist few weeks ago

Your help will be much appreciated

Thank you

[suzie44na]

Hi, I am suppose to have this, but I do not know much about it either. My Dr once suggested Pregabalin but it would not suit me as I am very sensitive to meds. I also seem to be getting floppy toes, don’t know the medical name for this. I doctors don’t really do much about it. Hope your neurologist can help you soon, all the best.

Suzie

[Benhur1 in reply to suzie44na]

Thank you

I referred to see neurologist when I really don't know.

Do you live in uk and you been referred

[suzie44na in reply to Benhur1]

Hi, yes I live in the UK. I have seen neurologists but not for peripheral neuropathy. They think I have a genetic problem, but I have no definite diagnosis. They did find I have a faulty PNKD gene, but all my symptoms don’t match this, so specialists are still not sure.

Suzie

[Kji378]

Hi there, I hope you have had some professional advice by now, apologies I have only just read your post.

I can only relate to peripheral neuropathy re liver disease.

Hot hands and burning feet, cramps and big Ouchy!

I was told my red, burning palms / hands was "Erythromelalgia" quote NHS website " is a rare condition that causes episodes of burning pain and redness in the feet, and sometimes the hands, arms, legs, ears and face"

However I was also told it was Peripheral Neuropathy re nerve damage.

I can only say for myself I found the gel pads/packs that you can freeze or heat - for sports injuries etc are amazing. I freeze 2 then wrap in a tea towel each and have one for feet and one for hands, top and bottom of bed! Heaven!

I hope this maybe some kind of help to you. (I think I can post this without it being a medical suggestion, which obviously we are not advised to do).

*Administrator if it is apologies, please correct me.

Take good care and best wishes. 🙂

[Benhur1 in reply to Kji378]

Thank you for your help and recommendation, how's your hands and feet during the day

[Kji378 in reply to Benhur1]

Hi there

Not too bad during the day, apart from horrible cramps, looks like I have birds of prey talons for hands, or start limping if my feet cramp, swearing a lot!

"Dermacool" was given to me on prescription for the burning, it is helpful as has menthol ingredient in it, but it's not a magic wand, I find the gel frozen gel packs in tea towel really helpful. Capsicum cream is also supposed to help, but I am yet to try it.

If you suffer from cramps as previously said, Quinine helps, although the amount in tonic water is only tiny, again I was given Quinine tablets and Magnesium tablets to help with cramps, except my liver co edition is different and I have to be super careful what I can take.

Magnesium gel, ('MG Sport") or equivalent is also very good for cramps and restless legs etc, but only need a bit as goes a long way. It is for athletes, I am far from an athlete, but it all helps! 😊 I hope you get some kind of relief soon.

Please be sure to check with your consultant or Doctor before, the above are only my personal experiences.

Take good care and best wishes. 🙂

[Benhur1 in reply to Kji378]

Thanks mate

[Kji378 in reply to Benhur1]

Oh I forgot...this link may be of use also.

mayoclinic.org/diseases-con...

[Kji378 in reply to Kji378]

For the link above.

When you visit this link on the search bar, just type Peripheral Neuropathy.

[Benhur1 in reply to Kji378]

Thank you