Pelvic Pain Support Network
10,125 members3,186 posts

Give me some hope ... please?!!

Sorry to moan - I really try not to but I just don't know what to do/think anymore.

After years and years of undiagnosed pain, I had my appendix out a couple of years ago. They could tell it had been scarred so were pretty sure that was the root of the problems. However a pain carried on and earlier this year I had a hysteroscopy and laparoscopy where they found some (apparently not loads of) endometriosis. Months on from that and I'm still getting very odd bouts of pain.

I can literally be totally fine one minute and the next minute in agonising curled-up pain spreading right from the pelvic area up to my chest.

Also (and sorry for too much info but guess none of us will be too squeamish on here) but I get frequent clots but not near my period? In addition I had a terrible gush the other day. Thinking it was my period starting early, I rushed upstairs and it honestly looked like poo?!! After some research I'm wondering if it's an endometrioma? Has anyone had this? Has anyone any advice? Has anyone ever been to A&E before because of the pain or just sat through it? I'm really one to try and sit it out but it's becoming quite depressing now.

My consultant had said to give it a few months - he hadn't seemed too worried but as the months have passed now, I'm going back to see him on Saturday.

I had a bout of pain two nights ago and can still feel a niggling twisty pain really low.

Hoping someone out there knows how I am feeling. I sit here at work just putting up with things and not saying anything to anyone.

I do also have PCOS and struggling at the moment with a bit of weight gain (I'm still in the lower side of normal BMI-wise though so I know no-one would think that a worry).

Sending love to all you ladies out there suffering - genuinely ... it's terrible xx

2 Replies

You definitely need to mention all this to your consultant when you see him. I can't really help with your symptoms, but let us know how you get on. Take care.


Have you spoken to your doctor about having a ct scan to check if you have any cysts on your ovaries? I've have cysts that give me a lot of pain. After a while they burst and this sometimes gives a horrible discharge/clot of blood. I'm in complete agony for a few days, my doctor has said that I will have these until I go through the menopause. Hope this helps you.


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