Fed up !!!

[missy666]

Hi I have had Pudendal Neuralgia for 8 years now...I am so despondent at the seemingly lack of progression in treating this condition. I am treated in London but have been interested in the comments re Nantes, it is so difficult to make rational decisions about your treatment and your future when you are in a state of utter despair . Is there anyone out there that has actually had prolonged improvement due to any sort of treatment ?

Here's hoping.

[csm101]

I can completely understand your situation, I've tried about every treatment except surgery. Not much has helped me. 2 days out of 7 I can function, not pain free but I can at least get some work done. The other 5 days i'm in the fetal position

[kalecolbe12]

So some new things that are coming up are ptns which is tibial nerve stimulation in the article which is supposed to help the nerves in the pelvic floor...also Cryoablation of the nerve which is supposed to be helping a lot of people... look up dr. Prologio cryoablation and you will find it...have you tried Botox or nerve blocks??What meds have you tried?also compounded suppositories of valium and lidocaine are helpful to me,however muscle relaxers and anti anxiety meds help me too.we just have to keep pushing on because I know it's getting more and more well-known now there are more and more pelvic floor physical therapist which has helped me a lot