New information on pelvic pain symptoms & cure

I have came across a website on the internet worth sharing, pelvicpainhelp.com/. Kindly have a look and share your feedback.

[Brenda48]

Hi, found this really interesting and plan to print it and give it to my GP who is at a loss as to how he can help. Because the pain is in several places he has tried to treat each one separately and I keep saying I think one is connected somehow to the next but it is a difficult concept to explain! Thank you so much for finding and posting this information.

[Hidden in reply to Brenda48]

You can order the book for detailed info on how to treat pain effectively. Believe me its worth every cent it costs. Hope you get well soon.

[Karen1954]

Hi!!! I too have severe Levator ani and have heard of the wise-Anderson protocol. It is expensive!!!! I can't afford to shell out $4500.00 plus expenses. My doctors say do not do this. My pain seems to have gotten better with pelvic floor therapy and Valium and chlorzoxozone. Am also doing regular physical therapy as our spine connects to our pelvic floor. I also have degenerative disk disease throughout my entire spine along with ibs which has gotten a lot better after four years. Have tried everything in the book for both. Was going to try Botox but since my symptoms have gotten better I decided against it. We will see. What type of problems do u have? I'm always here to listen!!!! I know exactly how u feel believe me!!!!! It's awful and no one understands the pain!!!! Debilitating!!!!!!!!! Do take care and hope to talk to u soon!!!!

[Hidden in reply to Karen1954]

Hi karen...i have been suffering from pelvic pain since last 13 years.....in short i can say that it has taken away everything that was beautiful and good in my life.....now what remains is pain and i do not have the will nor the power to suffer anymore. I just want to get rid of it...so i am trying and doing the protocol from the book itself.i myself cannot afford to attend their clinical workshop.

[Alaine1 Administrator in reply to Hidden]

Hi Neo9594

Can you be a little more specific about your pelvic pain? All of us have pelvic pain within this group but most of us have pelvic pain that can be identified. I myself have adenomyosis, endometriosis, IC and PFD as my sources of pain. It is great that the book is helping you Neo9594, although I would like to advise people to be careful as it may not be suitable for everyone to use this themselves without some input from a GP, hospital specialist or physiotherapist and shouldn't be looked at as a cure for their conditions. I'm just concerned that some people may think this will cure their pain. I myself have done women's physio which has helped with the PFD which has been caused by the other 3 conditions but it won't unfortunately cure them

[Hidden in reply to Alaine1]

I have non bacterial chronic pelvic pain. The protocol in the book especially help those where the pain does not have a pathological basis. No doubt one should refer to a GP/doctor for diagnosis part and line of treatment. The protocol in the book is a ray of hope for many where traditional treatments like antibiotics, surgery etc have failed. I would like to tell more and more people abt it who are still suffering because i have suffered myself and deeply know what pain is and what it can do to one's life. I am not making any claim abt the protocol, i am only suggesting people to try it and see for themselves if it is effective or not.

[Alaine1 Administrator in reply to Hidden]

I'm glad you are finding it helpful but just felt the need to add in my previous post that in many cases it's to be used alongside current treatments rather as on a stand alone treatment/without consulting your medical team. I think most of us here are waiting for treatment(s) that get rid of our pain completely so for you to have found something that is helping is great news 😊

[Karen1954 in reply to Hidden]

Hi neo!!!!! That was quick. I can't imagine having pelvic pain for 13 years. Have they determined what it is? Like I said I know mine is Levator ani. The muscles just spasm!!!!!! For some reason I feel a little better but sometimes it's aggravated by manual evacuation of stool due to my ibs and sometimes constipation. That aggravates it even more so I have to see a psychologist to help with the ocd on that. I use the therawand that helps with the spasm. It does work. What have u tried? I've tried acupuncture and pelvic floor therapy which does help and hypnotherapy and have read books on it. Use a heating pad and sitz baths. Use meds of course. I'd die without my pain meds due to the degenerative disease and three neck surgeries but also helps with the muscle spasm. I need it for the butt pain!!!!! I'm so sorry to hear how long u have had this pain in the ass!!!! Literally!!!! I couldn't deal with it that long!!!!! I'm so thankful it's gotten a little better but still would like it to go away!!!!! Please keep in touch!!!! I'm here for u!!!!!!

[Hidden in reply to Karen1954]

Mine is non bacterial chronic pelvic pain. I have tried yoga, meditation, hot water baths, and the protocol in the book. Does your levator ani has any pathological basis?

[Karen1954 in reply to Hidden]

Hi neo! Supposedly it's a lot of psychological including stress and depression. I had a rectal exam about year and a half ago and it seemed to happen after that. The tension I feel goes straight to the pelvic floor and feels like a rubber and being snapped. It's the headache in the butt. Like a migraine. Ibs also affects this. Alls I know is that I hate it!!!!! My heating pad is my best friend!!!! Along with my pain meds. It's just an awful pain that makes life miserable as u know. We will just help each other with our support. I'm here for u.

[Hidden in reply to Karen1954]

Hi karen...my pain has also pyschological basis. With no one to talk to abt my condition earlier, it feels great now to have you listening to me. Thank you so much. Sorry to hear how the pain crept into your life. You said you hate the pain.i would like to say that hating the pain wont help, rather it will aggravate it. Try accepting it. I know it is easier to say than done. But try accepting for a minute or so in the beginning.you can practice this say 4-5 times a day. You can try this acceptance technique in other situations as well which are stressful. Tell me if you experience any changes. By the way which pain meds are you taking?

[Karen1954 in reply to Hidden]

Hi neo!!!! Thanks for the info. I've been in pain with my neck and back for 25 years so I've tried to accept it and get through it and when the pelvic pain started I was like really? More pain!!!! I've been on norco for seven years!! Trying to lower my dosage and get off this and other meds but not sure I'll ever totally be off it as my neck and back flare up and it's excruciating!!! Have had many injections and epidurals over the years!!! Didn't help. I do relaxation therapy along with my pelvic floor therapy which helps. I'm glad I have someone else to talk to besides my therapist. If u don't have this u don't understand!!!! No one does!!!! I will try to do what u said!!! Anything is worth a try!!!! Thank u for listening!!! It is so appreciated!!!! Like I've said I'm always here. It's nice to know I'll hear from you!!! I've posted to other people and they don't write back. Thanks for being there!!!!!! Talk to u soon!!!

[Hidden in reply to Karen1954]

If you will be there, you will always found me there for you.have you tried trigger pt therapy? May be it can help.

[Karen1954 in reply to Hidden]

Thanks neo. God how I appreciate that. It means a lot seriously. I've been using the therawand for trigger points. My pelvic floor therapist can do trigger points but we haven't yet. I have to do manual evacuation sometimes which causes some problems internally so that makes it hard for her to do that. Everyone keeps saying don't do that but my stool gets stuck and won't come out so I have no choice and then that causes pain. It's a never ending cycle. I'm trying to stop doing that but I feel it and it won't come out!!!! Anyway thank u for being there. Someone who understands this is always great to talk to cuz no one understands. Thank u again.

[Hidden in reply to Karen1954]

Hi Karen,

Have you tried using stool softener and/or irrigationfor stool problem? I use irrigationwhen I have difficulty going, I would imagine it's less painful than manual extraction. Maybe it would cause less pain? Take care.

[Karen1954 in reply to Hidden]

Hi suebooo!!! I have tried stool softeners and enemas but I was using too many and caused me so much stomach problems and diarrhea and sometimes the enema causes more muscle spasm. U r right though I should use the enema. It would be less irritating. I'm down to one stool softener a day from eight!!!! Way too many!!!! Would wake up with churning tummy and have diarrhea for hours. I'm so sensitive now I can feel when a piece of stool is stuck in there. Have to get over that but it's hard!!! It's like an ocd thing. Thank u for caring and sharing. I sooo much appreciate it!!!! I'm working on it!!!!! What type of problems do u have? Just know I'm here for u!!!!

[Hidden in reply to Karen1954]

I have pundendal nerve entrapment from a rectocelerepair in 2013. Also had rectal intesusseption. Had lvmr surgery in Jan. I use irrigationand movicol to manage bowels and prevent straining.Always seem to be constipated!

[buzzdriver]

Hi ...I am a bus driver..sitting down for long hrs.had pudendal nerve pain for 2yr.tried nerve blocks ..drugs .still the same ..burning pain in the buttocks..like sitting on a piece of wood diagnosed as prostatitis. ..found a physio in the UK who is doing this kind of treatment ...the wand is not electric .but it's very similar,made of medical grade glass..unbreakable! ..

[Hidden in reply to buzzdriver]

you may have trigger points in your glutes muscles. Try massaging them by using tennis ball. Tell me if it did help.

[buzzdriver]

Bus driver continued. ....I am trying it have used it twice and yes it does calm the muscles in spasm down so I'm optomistic. Not a quick fix but..it's a gradual process. ..Google Dr Ruth Jones,she is a world renowned person on the treatment of pelvic pain

[Hidden in reply to buzzdriver]

Yeah its a gradual process but it can cure from the root. Hope you get over it soon.meanwhile keep doing it, regularity is the key.

[Foxwalks]

Many thanks for this link to the web site. I am halfway through the book A Headache in the Pelvis and I am at last reading something that I can identify with. For anyone suffering from pelvic pain this is a `must` read as well as this website. Thank you neo9594 for this link in the chain. Regards to all sufferers. Keep searching. Joan

[Hidden in reply to Foxwalks]

Its nice to hear that the book is helping you. It has helped many and it is really empowering.

[pieper]

i have the book and there is some good stuff in it,but the clinic i have been told by my pt who had 6 patients go there said that it is not worth the money. it is highly based on the mighty dollar. it is not covered by insurance and it is expensive. Get the book, take the good stuff and forget the rest. I have Levator Ani Syndrome and am constantly in pain, mostly rectally, sometimes vaginally, i have searched out so many resources and have seeen a ton of doctors. my next move is to see Dr. Colleen Fitzgerald at Loyola in Chicago, She is a pelvic floor specialist. From there if i get no relief, i am going to look into Botox injectiions at trigger points. looking into the side effects now.

Let's all keep talking maybe we'll find an answer among us.

[Pattimoe]

Another book to add to our never-ending quest for relief: Dr. John Sarno Healing Back Pain, The Mind- body connection

[Robertplewis]

Gonna take a lot of time to read it. But I think it's worth it. Will finish it as soon as possible. Anyway, thank you for posting it.

[pizon]

Good morning I was not able to find this article I see the age of it...however if any one has it please post or give a new address I would love to read it thanking in advance 🌻