What is Old Endometriosis ?

[fatefulserendipity]

Just been for my consultant appointment after LAVH with right ovary removed. I asked him if anything was found and he said just old endometriosis. I suppose i should of said what is that but at time i was still undressed after internal any clues ladies.

[nolaglen]

Burnt out/old endometriosis or active/aggressive disease ?

b 2 replies

The following quote is by Pr R Garry ( retired ) about H Reich, one of the pioneers of laparoscopic gynaecological surgery.

“ I had considered myself a bit of an expert on treating endometriosis for I had a couple of lasers and I knew that endometriosis was red and black spot lesions that could be vapourised out of existence with my guns. The hard material found alongside the endometriotic spots I knew to be just reactive fibrosis or BURNT-OUT disease. It was difficult to remove and could be safely left behind.

“ This changed the day I saw Dr Reich painstakingly removing all this ‘non-disease’ and placing it in 19 separate pathology pots. When challenged about the need to do this he told me to visit the path lab the next day and I was shown the specimens. Every one contained active glands and stroma and now I knew this was not burnt out endometriosis – this was what endometriosis is. This was a painful realisation for me and sent me on a long and very difficult road of trying to learn the skills to remove this dreadful disease".

"Burnt out " disease was decribed in my medical records as "old endometriosis ". It was left during 3 laparoscopies by 2 surgeons. Pr Garry read the letter about my surgery (which I had a copy of ) and told me this "old" endometriosis was active/aggressive/deeply infiltrating disease. This was proven by the pathology reports. I often wonder about women who would have been told that there is no active disease and how they have got on in the long term. It takes a long time for practice to change.

[nolaglen]

My last reply is missing who this information came from. I just did a copy and paste from PPSN_JudyB a year ago PPSN_JudyB who supplied the quote.

Burnt out/old endometriosis or active/aggressive disease ?

[PPSN_JudyB Pelvic Pain Support Netwo]

Yes, the above quote is from one of my posts. In your position I would ask the person who used the term "old endometriosis" what the histology, pathology report showed.

[fatefulserendipity]

it was was gynae consultant. i am definately going to ask more questions when i see him in 3 weeks x thank you for your reply x

[Hidden]

I have sent you a private message

[Fightback]

Hi. I am very interested in this post as I have just had the same I was still in recovery when I was told and also forgot to ask what it meant. My follow up appointment is 12th August so any advice before then would be much approximated stay well all