We are currently on the wait list cilia testing for my almost 12 month old. She has had a chronic wet cough from 2 months old and been on antibiotics since 3 months old, we are currently in hospital for her 3rd round of IV antibiotics.
She has tested negative for any PCD genes and her only symptom is the chronic wet cough. But what I am curious about...
🌸 her sputum samples are ALWAYS negative but...
🌸 antibiotics always clear up her cough
🌸 within a week of being off antibiotics the cough always comes back. She always has red ears but no discharge and her nose isn’t ridiculously runny.
I guess I’d love to hear from parents who have had children diagnosed with PCD and hear about their symptoms etc?
I don’t know, I’m at a huge loss!!