I only found out 5 years ago that I had this disease purely by luck. I was getting a lot of pain in my wrist and leg joints so thought I had better see my docs. Had a blood test done no was not arthitis but PBC. A bit of a shock as I also have type 2 diabietes and thyroid problems(35 years and heridatary). I am experience a lot of other health problems mainy catching whatever bug going around which has resulted in a lot off from work which makes me think the old immune system is shot. I have also dicovered,in my case, that PBC is thought to be heridatary as in the last two years I have lost two maternal cousins(sisters) who both had PBC for many years. It can be known to skip generations. as a precaution both my daughters have been tested both negative so far.
Problem is I do not know how long I have had this as some of the syptoms are throid/diabetic related. So far it has not progressed too far so guess I am lucky.