Hello everyone πŸ€: Hello. I read about PBC... - PBC Foundation

PBC Foundation

9,450 members β€’ 8,215 posts

Hello everyone πŸ€

Justiceandlaw profile image
β€’3 Replies

Hello. I read about PBC and i found this foundation where i read about these diagnose. I do not have PBC but we suspect my mother has it. For some other reasons she went on Computer tomography, and everything was ok but that doktor that read it told her she must go to gastroenterohepatolgist for cirosis. We went, so the doctor said she should should check all blood chek for hepar and bilirubin. On the resaults everithing is great, everithing in normal, ast, alt, ggt, all bilirubin, only AP if it should be to 120 her is 130. Doktor saw her on ultrazvuk or i dont know how u call it, ultrasound, sad hepar it is ok, no need for biopsy, but for preventive for Alcal Ph. he gave her Ursofalk and Hepafar. As she started taking Urso, the third night of take, started itching... Everything else is ok.Today i told the doctor and he sad she stops taking urso. I dont want her to stop taking, it is only medicine for Pbc, i think she should decrease the tablets. I am very scared she could die, please tell me you who have PBC will everything be ok ? My mom is 63. She is very scared also, she is in depresion grom thinking all day and night and reading on google .... Thank you all β€οΈπŸ™πŸ™πŸ™

Written by
Justiceandlaw profile image
Justiceandlaw
To view profiles and participate in discussions please or .
Read more about...
3 Replies
β€’
Oidra profile image
Oidra

I am not sure which foundation you talk about but the one you must get in touch with is pbcfoundation.org.uk. Please leave Google alone as it is not always correct and will cause unnessary worry. You can telephone the pbc fopundation and talk things over which may be easier for you. I was diagnosd at 60 and am now 84.

Justiceandlaw profile image
Justiceandlaw in reply to Oidra

Oidra hello ❀️ Reading on google i found this site , i just want all of you to write me experiances with this PBC. You gave me calmness now thank you very much. Tell me do you take Ursofalk, what else do u take and do you have Itching? ❀️

Oidra profile image
Oidra in reply to Justiceandlaw

I take Ursofalk, the amount is based on a person`s weight. Luckily I have never experienced itching but know people on this site have written about it.

Not what you're looking for?

You may also like...

Positive AMA went down to normal

Hello everyone, So my doctor diagnosed me with pbc but never put me on urso because my bilirubin...

Hello everyone

I was recently diagnosed with pbc and didn't realise that I had symptoms for at least 5 years...

Acupuncture and Naturopathy

Hello everyone. This is my first post. I was diagnosed with PBC in 2015. Have been on URSO...

im scared and dont know what to do

i ned some feed back...was diagnosed with pbc 09/2016 since then all test have come back ok...

Mother may have PBC & I’m scared + I need advice on her situation

Hi I’m new here but I’m hoping to get some help & learn about PBC. My story begins with my mother...