Hi I’m new here but I’m hoping to get some help & learn about PBC.
My story begins with my mother being extremely fatigued to the point where she’s been bed ridden for the past month. November 4th my mother came home from work & threw up the entire night. From that point on I noticed she would do nothing except lay in the bed barely moving & not eating. I would try to ask if she was ok but my mother is the type of person where if she doesn’t feel ok then she’ll lie about it & say nothing is wrong. She tried to say she thought she had food poisoning.
After 2 weeks she went to see her doctor because she had sharp excruciating pains in her right upper quadrant that would circulate to her back as well along with jaundice. Her doctor thought she had gallstones so her set up an ultrasound appointment for the next day. The next day comes, but my mother’s condition was worsening so I took her to the ER, where we found out she had a blood clot in her Superior Mesenteric Vein, her bilirubin level was 10.3(normally should be 1.0), & pancreatitis. On 11/16, the same night we came to the ER, she was admitted to the hospital for the next 4 days.
During the hospital stay blood work was done for numerous tests like CBC & everything was coming back normal which were leaving the doctors confused on why my mother developed a blood clot in that specific vein. The surgeon saw no reason to operate so they started her on blood thinners & released her from the hospital.
Now we’re back home and her condition isn’t really improving & idk what to do. We had a follow up appointment with her doctor on 11/28 where he told her he would refer her to a liver specialist bc he is suspecting that she may have PBC or another liver related disease. The appointment for the liver specialist is 12/18 & honestly I’m freaking out because I feel that is too long to wait. I watch my mother everyday & I’ve noticed the following things; always sleeping, no energy, gets winded from the smallest of tasks, won’t eat because of no appetite, barely drinks liquids, swollen abdomen & ankles, dark reddish bags under eyes along with slight yellow tint of her eyes, shaking of her hands.
I really feel like she needs to go back to the hospital but she doesn’t want to go & I cannot physically force her into my car & take her there. I’ve thought about calling an ambulance but from my understanding, they can’t take a person who doesn’t want to go the hospital right? I’m just really scared because I don’t want anything bad to happen & I feel like this is my responsibility to make sure of this, but between her & the doctors, nobody seems to be taking this as seriously as they should.