Swallow problems

[wendleberg]

Hi Everyone

This is my first post. I am a bit nervous as I've never blogged before.

I am starting to have problems with my swallow and wondered if it's a symptom of PBC and if anyone else has this problem.

Thank you

Wendy

[Candy12]

If it’s a new symptom, discuss it with your doctor there are many reasons for difficulty swallowing which should be investigated.

Its not noted as a symptom of PBC. However, I was told my difficulty swallowing was from a lack of saliva due to Sjögren’s syndrome, that you can have with PBC. (It turns out it’s not that and it’s something else entirely) so do get checked out

[wendleberg]

Thank you for that. I will speak to my specialist about it on my next visit

[Dianneblake in reply to wendleberg]

I have been diagnosed with PBC seven years ago and I have difficulty swallowing too. They are still running tests to find out why.

[Lezley23]

I have just had trouble when swallowing it feels like I have a dry spot in my throat.

[wendleberg in reply to Lezley23]

Hi LezleyYes. That's exactly what it's like. It seems get half way down then I need to take a drink for it to go all the way.

[gwillistexas]

I have limited schleroderma and my rheumatologist always asks if my swallowing is ok. So that is another possibility. Hope you get answers soon. 😊

[gillrich in reply to gwillistexas]

Oh I have difficulty swallowing thought t was my sojgrens don't have a rheumatoidologist perhaps I need one

[wendleberg in reply to gillrich]

Hi I was starting to wonder if it's Sjorgrens. I have dry eyes also. Definitely going to mention it at my next appointment

[gwillistexas in reply to gillrich]

I guess I missed that you’ve already been diagnosed with sjogrens. I was referred to a rheumatologist at my PBC diagnosis because of my antibody results. So he tested for all the other “weird” autoimmune conditions.

[gillrich in reply to gwillistexas]

I think I'll ask for more tests 20 years on with pbc!!

[gwillistexas]

Wow! That’s a long time. I’m surprised your drs didn’t suggest a rheumatologist to test for all other autoimmune diseases. Ya know, PBC likes to have sidekicks 🤣.

[gillrich in reply to gwillistexas]

Thank you xx

[CeeCee101]

I have difficulty swallowing but mine started years before PBC diagnosis. Your gastroenterologist will usually want to do an endoscopy to see why. I had another one recently as they wanted to make sure I wasn’t getting tag on AI disease like scleroderma. I was fine, it’s just my situation. But do speak with your gastro. Sjogren’s can cause dryness and it’s a big pal of PBC

[wendleberg in reply to CeeCee101]

Hi. Yes I think I will speak to him at my next appointment. Thank you for taking the time to answer me

[IAmTheGlue]

I’m sorry that you are having all this go on. 🙁 I do have a swallowing problem. I drink or eat soft foods for most of my calories these days and I get along fine. I still eat healthy. I drink my protein shakes and eat grits every day for lunch. Fruit is okay. Roast vegetables until they are soft. I use a calorie counting app to monitor my calories, protein, etc. too make sure I’m not over doing it, or neglecting my protein.

My hepatologist did suggest sending me for a swallowing study, but I am tired of being poked and prodded so I’m good for now.

I also have the dry mouth and eyes which I take Salagen for 3 times a day, use systane eye drops and daily disposable contacts as a “moisture bandage” for my eyes .

[wendleberg in reply to IAmTheGlue]

Hi

I also have dry eyes which I find very annoying more than anything else. But like you I hate being poked at so may just leave it as it is until it becomes a real problems