Achy pain

[She-66]

Hi I’ve got pbc/aih since yesterday I’ve had achy pain in my liver area . This is worse when I lie on it . Any ideas of what it could be ? Recently diagnosed so new to this

[Turquoise2075]

Hi, it sounds like the usual pain you can get with PBC. I get a feeling that varies between an achy pain and a stitch in the liver area and was getting that for a while before I was diagnosed. It hurts if it has pressure on it too which I found happened in a yoga class, as if it’s bruised. I think it’s just that the liver area is a bit inflamed and sensitive, but you can always check with your specialist. Mine advised it is just part of the condition. From what I’ve read the pain and fatigue that can happen in PBC do not necessarily relate to the severity or stage of the condition. Some people in advanced stages don’t have pain, itching or fatigue. Others in the early stages can have one or more of those things. It is a slowly progressing disease with more treatment options continuing to emerge. The PBC Foundation are a good source of info. Take care and all the best!

[recipes in reply to Turquoise2075]

Hi, so sorry for your pain. What does AIH stand for.

[She-66 in reply to recipes]

Auto immune hepatitis

[Turquoise2075]

P.S. I meant to say the AIH might be the source of the pain too. Others here with AIH might be able to advise on what they experience with that

[She-66 in reply to Turquoise2075]

Thank you x all an unknown still for me . Was diagnosed Feb at stage 4 cirrhosis already

[butterflyEi]

I get pain in the liver area especially after eating red meat (which I rarely do these days) or fatty foods. Apparently the liver swells a bit and presses on the capsule around the liver but it is not an indication that there is any worsening of PBC. I don't know about the impact of AIH relative to liver pain. A warm hot water bottle over the area can be soothing and I do not sleep on that side when the area is tender.

Have you joined the PBC Foundation? (free to subscribe). On Thursday there will be a Q&A session on Facebook Live and click meeting. If you email in your question in advance it can be answered by the consultant of the day. Here is the link:-

Thursday 21st April 2022 @ 2pm – Collette Thain MBE & Professor David Jones OBE

Event URL: pbcfoundation.clickmeeting....

Event ID: 292-316-838

[She-66 in reply to butterflyEi]

Aaah thanks for that … am at work when they are usually on ! Typical !

[butterflyEi in reply to She-66]

You can still email your question and then catch up on Facebook Live later if that is any help.

[She-66 in reply to butterflyEi]

Ah that’s great thanks