COVID-19 Statement 18 March 2020

[PBCRobert]

For those of you who are not using our website or facebook page, here is a link to the latest statement from our Medical Advisory Board.

pbcfoundation.org.uk/news/l...

Please note, people with PBC tend not to have a “compromised” immune system, unless there are other things at play. Those with cirrhosis, however, are considered “immuno-compromised”.

[gwillistexas]

Thank you so much. Healthy wishes to you and your family 😊🙏🏻

[PBCRobert Partner]

Thank you. We are socially distancing ourselves but still working away for you all!!

[chrissey7 in reply to PBCRobert]

Thank you Robert

[kimphoebe]

Thankyou Robert

As I have now got cirrhosis that cleared that up for me as I wasn’t sure.

Kind regards

Heather

[PBCRobert Partner in reply to kimphoebe]

As someone with cirrhosis, you would be considered to be “immuno-compromised” and hence at more risk.

The good news is Italian data is saying that immuno-compromised patients tend not to get the virus so bad.

It is almost that a weakened immune response stops the spread within the lungs.

Personally, I would be using that info to reassure myself but would still be following Gov guidelines and still self-isolating.

I hope that helps.

[4pjx__ in reply to PBCRobert]

Thank you Robert. At least there's a little bit of good news for us.

Pam

[VeeWat in reply to PBCRobert]

Is there a link to that Italian data?

[kimphoebe]

Thankyou Robert

[Lawyers]

Thank you!!

[Ktltel]

Thank you.

Stella

[gardenfun]

Thank you very much! Stay healthy all.

[Flowerwh]

Thanks.

[Candy12]

Thank you for the immune system information, I was thinking about that a lot. I don’t really know my stage so I’am being careful anyway. Stay safe,

[Shezza123]

Hi sorry I may sound stupid but worried are we saying then that I’m at no more of a risk than anyone else if I have pbc ? As I work in a private day nursery and need to work as need it left open for children with key worker parents ?

[PBCRobert Partner in reply to Shezza123]

There is not a simple answer but I shall try. The Gov guidance is best, for all different countries offer slightly different advice.

Someone with PBC is not at more risk of contracting COVID-19. However, the Govt has said anyone with a “chronic liver condition, such as hepatitis” should be doing a certain thing. Technically, this would include people with PBC.

[Shezza123 in reply to PBCRobert]

It’s really hard isn’t it to understand but thank you

[Cathycomehome]

Thank you all so much for your help and kindness......keep well xx

[SueLondon]

Thank you so much Robert for those wise words, stay healthy and safe everyone. Social distancing....it's the future (for now) xx

[IOW-gal]

Thank you Robert for this. I have some cirrhosis and until now have never worried about it. Not sure now though.

[Sydgal]

Thankyou Robert 👍🙂

[Loobyloo54]

I have heart disease also following a heart attack and angina , where does that leave me ?

[Loobyloo54]

I have heart disease following a heart attack and angina so where does that leave me Robert

A little confused

[zinchunter]

Thank you. Cirrhosis yes, but good news that might be less vulnerable. Keep taking the tablets.....!

[My-life]

Thank you Robert.