Now, I know many people with PBC have spoken about memory issues over the years. It has also struck us as an organisation that medics have been slow to take this on board as a PBC issue.
So, is there any way we can categorically state the problem. Is it possible to give an answer here with:
age, length of time diagnosed with PBC, when memory problems started and what they are?
Perhaps, using this material, we can take it to the medical advisory board and have some serious discussion around this matter.