I took this photo this morning after breakfast of my skin on my arms and hands. I also have these bruised and torn skin areas on my face, neck, and chest. I've mentioned before about having extreme itching and this is what I get when I scratch. I try to keep my fingernails cut short so I don't rip or tear my skin, however, I bruise and tear my skin so easily.
I have changed my diet to foods rich in Vitamins A, B, C, D, E, and K. I am also taking supplements for vitamins.
I noticed the majority of people with this disease are having weight problems with being too heavy. My cross to bear is being underweight. Prior to being diagnosed with PBC, I had severe issues with acid reflux. My doctor chose to perform a gastrectomy to take care of that. I was 170 lbs and within a year, I lost 50 lbs. I'm currently 88 lbs and I'm trying to gain weight.
But then, I got sick. I got some internal infection in my lungs and it made me very sick - apparently on the brink of death. I wish I could tell you more about my hospital experience, but I truly don't remember. I was too weak to battle the infection. I was put on a breathing machine and stayed in the hospital for approximately 2 weeks. The, I had to go to a rehab facility in order to get my strength back. This happened to me twice in 2017.
I had lost my mind. I didn't know who I was or where I was. I couldn't remember the people around me. I couldn't remember what day or what year it was. I was seeing things that actually weren't there. It was the most bizarre feeling I've ever had in my life.
I am still on oxygen, 2 liters 24/7 days a week. My doctor says I have COPD, so I'll be on the O2 for the rest of my life. I'm taking Ursodiol, Ocaliva, and Creon for the PBC. I also take other medications to keep my blood pressure in check. 13 pills/capsules a day - not to mention the supplements.
Any of you have similar experiences? I welcome any feedback from any of you. Since I've joined this group, I have learned so much. I'll be seeing my doctor in two weeks and I have a list of things to ask him.