Fibroscan results

[ETW1]

Hi was diagnosed with pbc through blood test October 2017 and now on Urso. I had a fibroscan in January and the eresults were 13.9kpa F3 fibrosis. Can any explain this to me please?

[Hidden]

Did you have a biopsy

And do you know the stage you were when they diagnosed you

Are you having symptoms

[ETW1 in reply to Hidden]

Hi Jenny, no I have never had a biopsy, and I was diagnosed purely through blood tests. I am ama positive m2, no symptoms only raised Lft. I have had pain under my ribs on my right side for a long time and am fatigued, but nothing else.

[Ballymahon2 in reply to ETW1]

I was given a fibroscan in october as soon as i was diagnosed with pbc

Its shocking that you had to wait till january for a fibroscan

[Ballymahon2]

Do you have symtoms

[ETW1]

Hi..no symptoms really, pain in right side below ribs and fatigue for a long time knw.

[Hidden in reply to ETW1]

I’m hoping that the fibroscan is wrong. I’m very worried that I am father along as well. Did you have ct scans or ultrasounds too

[ETW1 in reply to Hidden]

I had an ultrasound done in June months before my diagnosis. It showed no fatty liver and no sign of alcoholic cirrhosis. Thats is why I think I got a massive shock in October when they told me I had pbc.

[Hidden in reply to ETW1]

I had a mri and ct scan with and without contrast and ultrasound as well as a biopsy.

[ETW1 in reply to Hidden]

Jenny have you been told a stage? And when and how were you diagnosed?

[Hidden in reply to ETW1]

I was told that I’m very early just like you. I was staged with blood and biopsy. I feel a little comfortable because I go to the Mayo. But hell. I had my biopsy done in vero radiology in Florida. I had a bad time with the radiologist and his tech. They were having fun not understanding why my report said that my GI dr was looking for Cirrhosis. In June 2017 was my last ultrasound and mri. But I read through your postings and I have same symptoms as you. I also have aih. I have no family support. They can’t just go away they have to torture. The stress that I’m going threw is over the roof. I’m not going to be able to have any form of quality of life if I don’t figure something out soon.

[ETW1 in reply to Hidden]

I really sympathise with you having multiple health problems. Here in the UK they tend to do fibroscans more than biopsy. I wish you lots of luck for the future.

[PollyO in reply to Hidden]

You have to control the stress with any auto immune disorder. That I can tell you...

[Ballymahon2]

Hepatologists seem to use fibroscans instead of biopsies

[MissusTee]

Fibroscan is replacing biopsy in the uk, as the liver is too big for biopsy to be accurate. It measures the stiffness of your liver.

[kimphoebe]

Hi I had a fibroscan a few months ago and it was 16.3 which on the metivar scale is f3/f4. Which did surprise me cause when dx in 2012 was told very early. Seems to be progressing faster than I would like it. Currently on a clinical trial as not responding to uso which is showing positive signs as bloods are normal for the first time in 5 years.

[ETW1 in reply to kimphoebe]

Hi are you in the UK?

[kimphoebe]

Yes I am 👌

[ETW1 in reply to kimphoebe]

Which hospital do you go to? I take 1,250 Urso, not had any problems so far.

[Hidden in reply to ETW1]

Do you know what your enzymes was when you got diagnosed

[ETW1 in reply to Hidden]

Not really, nobody has actually spoken to me about numbers etc. My rheumatologist said somethin about gg450 and alk phos 200.

[Ballymahon2 in reply to ETW1]

Ggt is high but alp is just over the normal range

[kimphoebe]

I go to the QE in Birmingham, all enzymes we're around 700 and ggt was 1300

[ETW1]

I have only been to see my consultant once for diagnosis in October, I go to Broomfield in Essex.

[kimphoebe]

I go 4 times a year at mo but when first dx was going every 2 weeks for months