Appointments at QE Birmingham: Hi hope you... - PBC Foundation

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Appointments at QE Birmingham

cavi profile image
cavi
6 Replies

Hi hope you are all keeping well in these uncertain days, had my March app cancelled along with many others of you that did i have had a new app for July 7th to see consultant and bloods unsure about if i will get a scan well over due but this morning had a call from my GP to say i must go to surgery to have bloods done as QE had been in touch with him and to send my blood results to the consultant Dr Trivardi at the Liver clinic then i had a missed call from QE today so im a bit unsure why they tried to get in touch with me and i carn't get to speak to anyone now until Mon my bloods are ok i have phoned surgery and my results haven't changed since my last bloods done in Sept 2019 that i had done at the QE so thats good a long story but as anyone had the same happen to them having to have bloods sent to QE or have you had contact from QE over the phone Take Care

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cavi
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kimphoebe profile image
kimphoebe

Hi there

Yes my appointment was cancelled with dr Trivedi in March. Then had a call from my gastrolagist locally to come and get my bloods done as she had a email from him. Not had bloods since January after stopping the seladelpar trial. Not had scan since last July and was told I have cirrhosis. These are ver difficult times indeed especially if you have a illness anyway.

cherylrosie-14 profile image
cherylrosie-14

Hi Cavi, my app should of been next Wednesday and has been put back to February next year for some reason. So I'm concerned I'm not having my bloods check for 14 months for when I went the QE last Autumn. Perhaps they will contact my GP also.

Oidra profile image
Oidra

My QE appointment in March was changed by letter to June. Then another letter has changed it to September.

I have had no contact with the clinic since my last appointment in October 2019. Luckily I am feeling pretty good , just hope my next blood results are good too!

Slm66 profile image
Slm66

hi yes my appointments have been rearranged i had a nurse from my gp surgery come to my hometo take bloods

my consultant from the QE also rang to see if i was ok and to reassure me that my bloods etc will still be being monitored and if i cant get meds to call they will send them out through the post

raqs67 profile image
raqs67

Hi I had my appt cancelled for may and just sent a new one for September. Haven't had any bloods done since early January. My meds were sent down by post, that was incredibly efficient, rang on the Monday and they were here on the weds.

Bunter profile image
Bunter

I had my April appointment cancelled and rescheduled for July. That has now been cancelled and replaced with a telephone appointment in mid June. A consultant rang me in April to see if I was ok and organised medication to be sent as I had previously had difficulty getting one item locally. He advised me not to have a nurse come to the house to take blood as I am shielding and blood tests have been normal for 2years. He said wait till I go to clinic in July. As that is not happening now the GP is arranging for me to have blood tests before telephone appt. I’m not aware that QE have been in touch with GP.

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