Pbc trialšŸ˜„: I was invited to participate in... - PBC Foundation

PBC Foundation

9,444 members ā€¢ 8,200 posts

Pbc trialšŸ˜„

Lcagar63 profile image
Lcagar63
ā€¢7 Replies

I was invited to participate in a Pbc medication trial .fortunately I'm a responder to urso witch I have been taking 1000 mg a day for over a year.

The trail is to try and establish why some people respond to urso and others don't. Due in the trail I will be doing lots of different tests. My first test will be on the 6th October where I will be giving different samples.

I'm glad to be part of this trial as I will be helping Pbc sufferers who don't respond to urso and my own ppc will be monitored. Win win situation all around.

Has anyone else been invited on this trial

Written by
Lcagar63 profile image
Lcagar63
To view profiles and participate in discussions please or .
Read more about...
7 Replies
ā€¢
Sachin1234 profile image
Sachin1234

do you know what I have to do to participate?

Lcagar63 profile image
Lcagar63 in reply to Sachin1234

I was sent a letter saying my hospital had put my name forward and would I like to take part. It is not a trial it is a study. Used the wrong word trial.

Ktltel profile image
Ktltel

Lcagar63,

Yay for you!! Please keep us posted.

Stella ā¤

Lcagar63 profile image
Lcagar63 in reply to Ktltel

Sure will Stella X

SharonM69 profile image
SharonM69

I'm going to my first one next week at Addenbrookes, I'm newly diagnosed.

Sachin1234 profile image
Sachin1234 in reply to SharonM69

They want a study you as well šŸ‘šŸ¼

SharonM69 profile image
SharonM69 in reply to Sachin1234

Yes, they wanted to do it as I'm only on 250 ursofalk a day at the moment I'm gradually building them up every month

Not what you're looking for?

You may also like...

Why would my Alk Phos go up after just starting urso?

Hi All, I have a question and wondered if anyone had an answer to if they had a similar...

Weight Gain and Urso

I was wondering... Did any of you gain weight after starting on Urso? I feel like since I started...

Cramps

I have PBC and am in 70s. Does anyone else have terrible muscle spasms, cramps in legs and hands?...

MRI with/without contrast anyone?

Hello friends I hope youā€™re doing well! Iā€™m booked to have a liver MRI ā€˜with contrastā€™ which Iā€™m...

early retirement due to ill health

hi Iā€™am just wondering if anyone has retired early due to the extreme fatigue and brain fog...