Pbc trialšŸ˜„: I was invited to participate in... - PBC Foundation

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Pbc trialšŸ˜„

Lcagar63 profile image
Lcagar63
ā€¢7 Replies

I was invited to participate in a Pbc medication trial .fortunately I'm a responder to urso witch I have been taking 1000 mg a day for over a year.

The trail is to try and establish why some people respond to urso and others don't. Due in the trail I will be doing lots of different tests. My first test will be on the 6th October where I will be giving different samples.

I'm glad to be part of this trial as I will be helping Pbc sufferers who don't respond to urso and my own ppc will be monitored. Win win situation all around.

Has anyone else been invited on this trial

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Lcagar63
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Sachin1234 profile image
Sachin1234

do you know what I have to do to participate?

Lcagar63 profile image
Lcagar63ā€¢ in reply toSachin1234

I was sent a letter saying my hospital had put my name forward and would I like to take part. It is not a trial it is a study. Used the wrong word trial.

Ktltel profile image
Ktltel

Lcagar63,

Yay for you!! Please keep us posted.

Stella ā¤

Lcagar63 profile image
Lcagar63ā€¢ in reply toKtltel

Sure will Stella X

SharonM69 profile image
SharonM69

I'm going to my first one next week at Addenbrookes, I'm newly diagnosed.

Sachin1234 profile image
Sachin1234ā€¢ in reply toSharonM69

They want a study you as well šŸ‘šŸ¼

SharonM69 profile image
SharonM69ā€¢ in reply toSachin1234

Yes, they wanted to do it as I'm only on 250 ursofalk a day at the moment I'm gradually building them up every month

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