I just got the results of my liver Biopsy.
Not good at all however, I am responding to the Urso and my liver enzymes are now in the 600 range (were 1700) and my AMA's are down 20%...
Not sure if either of those #'s right now just that they are down...
I'd like to talk to those of you in this stage and in this Grade Range...
how long have you been dealing with PBC and how are you feeling?
What is your lifestyle like? Do you ever get back to normal? I can't be on my feet for over 6hrs it just kills me!
This uncomfortable stiffness I feel from the fibrosis, will that go away as my liver rids itself of the inflammation as it is still doing with me?
I'm lucky that I don't deal with the debilitating itching or fatigue but I do deal with both...will that improve with this disgnoses?
I was told to watch my protein intake, too much and the liver can't excrete the ammonia byproduct of the protein breakdown and not enough and the liver can't start to repair the damage as it needs protein to do so...🙄 How do we know what is enough what is too much? I have an appointment to see a Nutritionist in August...can't get in any earlier...anyone know about this?