Cramp: Does anyone suffer from cramp. I get... - PBC Foundation

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Cramp

Jules-S profile image
24 Replies

Does anyone suffer from cramp. I get terrible cramp in my feet and it seems to be getting worse. I have PBC and Fibromyalgia.

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Jules-S profile image
Jules-S
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24 Replies
Q8Cooper profile image
Q8Cooper

Hi Jules,

I get Charlie horse like cramps in my abdomen, calves, and feet. So far I don't have any medical reason that would explain this. My doc has advised me to keep hydrated.

Kathy

Jules-S profile image
Jules-S in reply to Q8Cooper

Thanks. I drink at least 2ltrs of water a day so in my case I don't think it's hydration x

Oidra profile image
Oidra

I get cramp in my feet too, very painful especially when you wake..I have PBC.

emerich profile image
emerich

Hi Jules

I get cramp in my feet when I've been standing for a while, especially on a cold, hard surface. I also have pbc.

Heleno profile image
Heleno

I have PBC and get really bad cramp in my feet especially when doing exercise.

vicary profile image
vicary

Hi Jules, yes I get it all the time , along with the severe itching it too can wake me through the night and I have to get up and walk about till it goes ! The effects of this condition just seem to be endless .

Jules-S profile image
Jules-S in reply to vicary

Thanks for the reply. Fortunately I don't get the itching so I suppose I should be thankful and get on with it 😊

vicary profile image
vicary in reply to Jules-S

I am so glad you don't itch and I hope you never do , that doesn't mean to say cramp is any easier to cope with and can be so so painful , the main cause of cramp can be poor circulation esp in the feet , circulation boosters really help .

Hope yr cramp stops soon ☺

Jules-S profile image
Jules-S

Thank you for taking the time to reply. At least I know now. The support you get on here is great 🙂 x

Mysa1981 profile image
Mysa1981

My husband has cramping feet all time and gets worse at night

chrissey7 profile image
chrissey7

I was told by a friend to eat a banana before bed worth a try

Jules-S profile image
Jules-S in reply to chrissey7

Thanks for that, I'll give it a go 😊

gwillistexas profile image
gwillistexas in reply to chrissey7

Some say it’s low potassium but dr checked mine & it was good.

noram profile image
noram

I have cramping in calves and feet.

This started happening when i cut dairy out of my diet. (I used to regularly consume raw goats milk and kefir and cheese.) My health coach suggested i supplement calcium magnesium. I am taking 2 caps Bone-up (by Jarrow Formulas) 3 times daily with meals. This seems to be helping. Cramps have stopped. My boyfriend, a long time cramp sufferer has gotten results with Bone up during the day and K2 before going to sleep at night. He believes it is the K2 that is causing the results. He mentioned that Dr Mercola and his wife eliminated cramps with K2. Coincidentally, i noticed Bone-up does have K2 in it.... so i am going to experiment with a K2 supplement exclusively to determine if that is the determining factor.

AngelaBarron profile image
AngelaBarron

Hi, Yes I do too, particularly in my toes recently, for no apparent reason. I don't itch either!

Lookforward profile image
Lookforward

Apple cider vinegar ( organic )

A shot glass amount with a little honey and hot water twice a day ..

Part of my remedy kit and is helpful

Use it on my skin ( without honey) for itching and is good at relieving it temporarily

Shower then apply all over , leave it for 5 mins and just rinse off with cool shower .. if you have time dry au natural.. I don't use soap and wash my hair separately ..

Also can try asking your Doc about quinine tabs for cramps

Or

Tonic water containing quinine although it's in small amounts

Regular walking and stretching ...

all part of strategy but each to their own ..

hope this is useful ..

uitlander profile image
uitlander in reply to Lookforward

Thank you really helpful suggestions - already using tonic water but will add the others to my strategies of coping with PBC.

JaneIng profile image
JaneIng

SlowMag works very well for me and my friends. 2 pills before bed works wonders. Walmart has the best price. But they sell out pretty fast so I order from Walmart.com.

Best luck to you.

Jane

bartholomewpatri profile image
bartholomewpatri

I did get cramps but I knew I had read about that's a sign of a magnesium deficiency so I began taking one magnesium tablet daily and the cramps stopped immediately it also stopped the constipation I had when first starting on urso.

Jowen profile image
Jowen

Hi, I also get cramp in my feet, especially when trying to exercise. My consultant says it has nothing to do with PBC. Interesting that a lot of us have noticed this. I have stopped exercising (bad I know but I feel too tired) - need to start again! I take urso, calcium and vit D. Right now medication works well for me, but I spend all my energy on full-time work and family. I have gained weight and lost muscle mass. Need to get in better shape! I have tried magnesium spray but didn't notice any effect. I guess I just need to get started with walks, swimming and moving around more...

Ellyne profile image
Ellyne

I also get cramping in my feet. Also when I exercise. I have tried bananas, tonic water, plenty of hydration and magnesium. In addition, my feet get very cold.

gwillistexas profile image
gwillistexas

I was having severe cramps in my toes & Charlie horses in my calves, almostvto the point of being sick. I had noticed when my thyroid was wayvout of whack is when they were the worse. I hardly slept for 3 weeks at one point. I told my dr I couldn’t take it anymore. He checked thyroid & I was getting way too much. When thyroid straightened out so did Charlie horses. And it always would catch me in a deep sleep. I have also wondered if it may have been caused by the statin. They’re hell!

Ellyne profile image
Ellyne in reply to gwillistexas

I also thought it might be the statin so went off of it for 3 months and still got it.

gwillistexas profile image
gwillistexas in reply to Ellyne

Yes, I considered the statin also. But I noticed I had no more cramps once I was off of it. I started having a few cramps in my toes a few weeks ago & found out my thyroid dose was too much. So I personally think it’s statin or thyroid. Who knows😊

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