Hi all, am new to this site and have had a grand aul time reading everyones posts. Helpful and enjoyable. I was diagnosed 16yrs ago and have only had the tiredness and nausea, the past few weeks the dreaded itch has started! I have booked an appointment with my GP this friday as I have been feeling run down and i tend to know when my Liver isnt happy. I suffer from a few other autoimmune ailments also, Raynauds, Granuloma Annulare, overlaping autoimmune hepatitis (which comes and goes) and reoccuring autoimmune Uveitis! wonderful I know!! only take meds (URSO) and a anti-nausea tablet so meds wise am doing not too bad.
I have a wonderful specialist that explains every stage to me in terms I can really understand, although when she described me as hanging over the edge of a cliff and she wants to know where the emergency pull cord is (when I didnt want endoscopy lol) I was a bit freaked out but she made me realise the importance of having certain tests done.
I have had 3 biopsys over the yrs and one endoscopy (which I dread repeating as it was horrific but necessary) i am at stage 2 of the PBC and finding times difficult with everything else I have going on, i am 38 with 3 boys 19, 17 and 2! and now have a little grandson so plenty to keep me busy.
I work full time at a local college which at times is extremely difficult as all i want to do is hide under my desk and sleep!!! but i push on and rest more that evening when I need it (not easy with a 2 yr old lol)
I have a supportive family and friends although i dont talk about my PBC to anyone so I am here to vent if needed and read all your comforting and helpful posts
Here is to new friends