Pbc/Aih

[janine541]

Anybody struggle to stay awake. Yesterday and today i could sleep all day

[Hidden]

Yes. It's concerning me. My doctor told my husband that it's because of the high dose prednisone. I disagree because I was tired before I was diagnosed. I was afraid to make morning plans because I didn't know if I was going to be tired or awake.

[janine541 in reply to Hidden]

These last few days for me have been awful. Hope you are ok. Im not on the steriod so its definantly not the answer x

[Hidden in reply to janine541]

My feet itch badly too.

And I gained weight

But there are people with much worse than me.

I am going to hammer my Dr for something to stay awake.

[janine541 in reply to Hidden]

Yes me too.

[Hidden in reply to janine541]

My bedroom slippers was really old and I have animals/cats and so I decided to toss the old slippers being that sometimes I walk in the house without shoes on then put my foot in the slippers. Got new ones. So far no itchy feet.

[janine541 in reply to Hidden]

Exellent. Hope it stays away. The itch is awful

[Hidden in reply to janine541]

I'm very angry at what humans have to go through that has autoimmune disease and no financial help. Especially with medication

[janine541 in reply to Hidden]

No i agree.I have applied for help and awaiting a decision.

Its awful because nobody can see it they think everything is fine.

[Hidden in reply to janine541]

Are you in USA

[janine541 in reply to Hidden]

No uk

[butterflyEi]

Hi janine541

I am retired so can drop off as I need to but yesterday I slept for two hours in the afternoon, a real deep sleep.

[hotdog in reply to butterflyEi]

Likewise 😄😄

[Rockie]

Some people itch more, others suffer from fatigue, and some suffer from both. That is due to PBC

[kristieerhodes]

Chronic fatigue syndrome is an issue that comes along with PBC. I was diagnosed in 2005 and in a way was relieved to find out because it explained the major fatigue, severe itching and a few other things. I have literally felt so full of energy one second to almost collapsing the next. Eating healthy or healthier, getting undisturbed rest and trying to stay somewhat active does help; you just have to stick with it.

[Missboro]

For the last few weeks I've been feeling more tired than usual. I struggle to stay awake and keep nodding off while watching TV. Most days I have to give in and end up going to sleep. I can go into a deep sleep from 2-3 hours but it doesn't make me feel any better afterwards.

[janine541]

My tiredness is a nightmare. I could sleep all day. I find myself planning my times i can sleep.

If i sit down i fall asleep. I try to sit in the kitchen and keep the heating off but nothing seems to be working. I go to work and come home and thats it.

Have a busy house hold. My 2 sons live at home still and tend to have friends round. I advise them and my husband to fend for them selves.