I'm 63 yrs old, & although I've only been officially diagnosed with PBC two & half years ago, I believe I've had it at least 20yrs ( when a blood test carried out in Florida, whilst on holiday highlighted high LFT ) .
Up until 18 months ago I can say I was completely asymptomatic, but since then I've had what I call episodes of fatigue, one episode lasted approx 5/6 weeks, when I suffered both fatigue & aching joints, but generally just random days when I'm completed wiped out, so the PBC hasn't impacted too much on my life, & thankfully I'm retired now. Up to breaking my hip, I was fairly active with a good social life.
However, 5 weeks ago, I fell & broke my hip ( first break I've ever had ), this resulted in a total hip replacement, I was in hospital for 8 days, longer than the usual 3 - 5 days. I spent the majority of the time sleeping & fatigued, so this impacted on my recovery, as very often the physio team came to get me moving I was ' out of it ' ! this worried me & I wondered if the morphine & co-codamol was affecting my PBC badly, so refused to take the strong pain relief, & opted for paracetamol only.
Since coming home, my progress has continued to be slow, & the fatigue is bad the majority of the time. What I can't understand is why some days I can be really bad, but sometimes I can feel much better, some nights I can rally & feel energised & back to my normal self, but next day back to square one, fatigued ! Unfortunately, I have to lie on my back, as not allowed to sleep on my side until 8 weeks, this hurts my back, even though I am sleeping on pillows to get some comfort. So no respite in bed.
Has anyone else had a physical trauma, which made there PBC symptoms worse & bounced back ? I'm worried that the fatigue will remain, & my life as I knew it has gone.
Thanks in advance for any response or advice.