Has anybody read a book called 'Curing Courtney'? It's an account written by Courtney's mum of how she 'saved' her daughter from having to have a liver transplant due to autoimmune hepatitis by weaning her off steroids and using diet and supplements. Be very interested on your thoughts ...
CURING COURTNEY: Has anybody read a book... - PBC Foundation
CURING COURTNEY
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I have never heard of the book however would love to know what diet adn supplements?
Hello, never heard of it.
Well not sure about this with regards to PBC. AIH (auto-immume hepatitis) is different to PBC.
I know when I was diagnosed back in Dec 2010 it was due to symptons of PBC (itching and at the time fatigue), abnormal liver function test (LFTs) and abnormal GGT plus I was found to have a 'high titre' of anti-mitochondria antibodies (the AMAs) and it is these AMAs that I am dubious about.
I do believe that for a cure in PBC we need to somehow eradicate these antibodies and I personally cannot see how diet and/or supplements can actually achieve this. I do think that diet and/or supplements can make for a better and healthier body but in the case of PBC I am so certain that would be all that is required.
I don't know much about AIH except from odd bits I've seen on here with myself just having PBC and only taking urso and nothing else like supplements or any other prescribed tablets and even over-the-counter ones too. I do know that at times it seems that steroids are used in AIH due to inflammation as steroids are anti-inflammatory.
Also with PBC it has to be remembered too that it is our bile ducts that are the parts that are under attack thus causing the liver to become poorly due to bile leakage.
I shall certainly have a snoop to see if I can find the synopsis for the book mentioned but in my case I doubt I'll be reading it.
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Aih is also antibodies so if worked for that it might work for us...sounds interesting doesn't it.
Hi, I had a look at the web site and in the stories by people who have been "cured" it is very common that they were misdiagnosed. I do believe a healthier life-style helps but I am very suspicious when you have to buy books or pay for supplements or pay for advice from someone. I think there is much to be said for micro-nutrients, organic foods and exercise has been proven to help with almost everything and of course following a very strict diet that you know is good for you is a good idea. However, there was nothing about PBC being cured and as far as I know, symtoms can vary and the progression halt too. I hope it is possible to cure auto-immune conditions, just could not see much proof of it on the site.
Did you look at the you tube clip? Well, I sent off for the paperback - thought 'what the hell? If I've wasted ten pounds okay but I might glean a bit of knowledge - I personally think that the girl Courtney went into remission after five years on steroids - but was just interested to see if anyone else had read it and what they thought. I am currently trying to cut wheat out of my diet. It can't hurt that's for sure - as for the supplements I am dubious.
Wendy, I agree with you as far as it certainly cannot hurt. Get off all gluten and all dairy products. Also, I personally believe the GMO's in the food is affecting us. Autoimmunes are too common today. Eat whole, unrefined, unprocessed foods. Eat like you're on a farm 200 years ago! Our diets and vitamin intake are key to our immune systems. I also have been doing a lot of reading (which I do a ton of) in regards to leaky gut syndrome. Heal your leaky gut and you will heal your autoimmune diseases! Everything stems from our gut, hence the reason we need a gastroenterologist. Read this article. Very interesting and makes total sense.
On another thought it could be that this girl in the book, Courtney had reached a point where the AIH had gone into remission if that is the right word. It can be found in PBC where it stops but there is never a guarantee that it won't start up again at some point. I haven't read the book nor will do but this is what I can think of might have occurred in her case, she had reached a pretty healthy comeback state that warranted her remission.