Hi I posted on here a few weeks ago regarding my lack of consultant appointment and care. I rang the gastro secretary again today and I actually HAVE an appointment next Tuesday. I explaind to you my situation regarding no appointment in over a year,,,well with me pursuing it weekly I have actually got an appointment with a gastro next week, not that he is a specialist in AIH/PBC, but it means I can get referred somewhere else.
I need an appointment because I am having some nasty symptoms, my gp is testing me for IBD to rule it out; however, I am getting very worried. I have loose bowel movements, horrible belching, wierd rectal throbbing and urge to go to loo.....I have also been doing some research and one of the drugs I am on mercaptopurine; which is a chemotherapy drug used to treat some cancers; can cause serious gastric trouble also lymphoma of the colon..so yeah am worried I been on these little gems for over two years now. I wonder if anyone on here knows anything about how I should stop this medication am looking for answers. These medications, steroids and mercaptopurine have ravaged my body. I feel tired all the time, no energy, can't even manage the housework and today I have some pain in upper right abdomen...I look very pale as well, am just so fed up, there has to be alternative methods of treatment.
I would appreciate any advice please xxx