So, I have had 3 very good blood results....NORMAL.....yes normal, so the steroids, urso and mercaptopurine are doing their job ( AIH/PBC), but I am fatigued, overweight which I was not before, cold all the time, I don't sleep well and many more. Is it normal to feel so unwell with normal liver function tests.
I went to town with my hubby last Friday and when we got home (bus), I just stopped, I couldn't walk. My legs were weak, my back was painful and I slowed down completely......is this normal? I have had these lil blighters since March 2012 and am getting more confused by the day. My Gp does not know enough about it, my gastro has left the NHS and am still waiting to hear who I will be seeing. My last appointment was 7 months ago where I was told I need another appointment in 12 weeks. I think I need to contact the hospital and make an appointment myself or at least be told when I am likely to have a new consultant. I may have to travel further, and if that's the case then so be it. I need an appointment because these last complications have developed recently.
I wish I could be sure what was causing the trouble.