Hi everyone, I am the partner of someone who is suffering from PBC. He was diagnosed three and half years ago (age 41) and was told that he was at stage 3 of the disease, so unfortunately quite a late diagnosis. He has been taking 1500 mg of Ursofalk and has been relatively okay until now. Infuriatingly the gastroenterologist would not put him on the transplant list then, even though his Bilorubin count was at 300.
In the last three weeks he has suddenly got much worse and is now in hospital with a swollen stomach and looking very yellow. The hospital is not being very forthcoming with information and he is getting upset. They have said they will put him on the list now but I am so scared for him.
I have been reading some of your blogs and you seem to be so optimistic, you have helped me.