I am new to this forum and wonder if you would mind giving me a little bit of advice?
I think I may have a problem with Vitamin B12, I am trying to address it with little or no help from my Endocrinologist and think that some of you on here will have a lot more knowledge and could maybe point me in the right direction.
I have very long term health issues dating back to my childhood when I became hyperthyroid, misdiagnosed, major problems followed and this is a pattern that has always followed me, I have lost years to this awful illness I am now hypo and have been trying to deal with this for a number of years.
I have suspected a B12 deficiency in the past but my blood tests have always come back normal, I think the last test showed it to be around 700 so I dismissed it as a possibility.
I have a number of symptoms that have pointed to a vitamin B12 deficiency but given the test results I have always thought it can't possibly be that. Most recently I had an MRI for my eyes, this came back and showed white matter changes. My Endocrinologist was not very helpful and because I have high cholesterol, blood pressure, diabetes etc says I need to go onto statins which I will not do.
The results of this test made me look more into the subject when B12 came up as a possibility. I know I should have arranged more tests but to be honest I was really freaked out and started taking B12, Solgar sublingual Cobalamin to start with then I moved onto Methylcobalamin as I understood this was the one to use (naturally the most expensive and hardest to source!)
Some of the symptoms I get are nerve like pain in my arms, neck and lower back, it seems to go in phases and then goes away again. Interestingly I have had a very sore tongue for a number of years, another symptom the doctors ignore - but since being on B12 this has improved 90% and gone from being a really bothersome symptom to very minor one.
I don't want to go on for pages so won't bore you with the long list of problems that seem to be beyond the NHS but I am convinced that B12 is at least part of my problem.
I now take the Solgar 5000 sublingual nuggets every day but am concerned as to whether this is enough to address a deficiency if I do indeed have this. I also wonder whether I should add Folic Acid and Biotin?
Should I request any tests or does the fact that I am taking B12 render them useless? I did request a Homocysteine test from my Endocrinologists but she said she had never heard of it!
I have such a long list of endocrine related issues that are very difficult to address but I do think I can improve things if I am right in this assumption regarding my B12.
I don't know if any tests would help given that I am taking B12, should I be trying to source injections? what should I do next?
Thank you for reading this, there's lots more to it but I'm trying to be succinct.