I have been diagnosed with pernicious anaemia and have 3 monthly injections of b12 what can i do to relieve symptoms

[jessica93]

My symptoms are pins and needles in my left hand feeling exhausted breathlessness and not being able to think clearly.Sometimes I have no symptoms but at present am experiencing the above symptoms and am unable to work.

[henesyma]

Hi Jessica...like the majority of us...we're striving to have the guidelines changed. 3 months is far too long for some of us...me included. I held out for 10 weeks last time and I was feeling aweful...told the nurse I couldn't wait the full 12 weeks and she didn't seem to mind at all. She is very supportive as she has a sister with PA and sees first hand how it affects people.

I'm starting a new job next week...just hope and pray I can keep my PA in check for another few weeks before my next injection.

All I can suggest you do is speak to your GP and see if they will reduce the waiting time to 8-10 weeks to see if there is an improvement over the next few months.

Good luck ...Michelle

[jessica93 in reply to henesyma]

Thank you .I had my last injection at the beginning of August but had to take time off work since 10th September thought it was stress but think probably PA symptoms.I think I do need to speak to my GP.Good luck in your new job.Jessica

[tracyxyz]

Hey Jessica, how where you diagnosed? I thought PA was active b12 deficiency and as active b12 does not go into the bloodstream I can not understand how anyone would prescribe injections for this disorder.Regards Tracy

[jessica93]

Hi Tracy, I had blood tests and these diagnosed a B12 deficency and i have an injection of Hydroxocobalamin 1mg/ml,1ml ampoule every three months.About a year ago the doctors did another blood test to see if i had PA and it came back positive.The symptoms i have which seem to recur are extreme tiredness,breathlessness,aches in my lower back and pins and needles in my hand.Regards Jessica