Vitamin D and remyelination in MS - Pernicious Anaemi...

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Vitamin D and remyelination in MS

Myoldcat profile image
7 Replies

Prompted by a post from MrsTuft, I found this study (from 2015) which I'm sharing so it has its own headline. I think many of us B12 deficients may also be poor absorbers of Vitamin D (note: should be taken with K2 and magnesium)

mscanada.ca/ms-research/lat....

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Myoldcat profile image
Myoldcat
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Nackapan profile image
Nackapan

Interesting .

My first deficiency found from a blood test ws vitamin D only 21 ( 75+)

But as most vit d from exposure to the sun it wasn't an alarm bell as working indoors and i used sunscreen.

Two of the factors alot are deficient .

Myoldcat profile image
Myoldcat in reply toNackapan

I was told off by a gp at my surgery for having a Vitamin D injection - I had dreadful shin and rib pain and wasn't sure whether it was B12 even though I was injecting eod, or Vitamin D that had dropped over the summer despite supplements. She said I could have had it on the NHS then corrected herself saying I wasn't low enough. I didn't tell her the NHS 111 doctor I'd called in desperation also had private Vitamin D injections...

But after the jab and with continued high D supplementation the pain went. This is when it feels really isolating - we're on our own trying to figure things out.

Jillymo profile image
Jillymo in reply toMyoldcat

Hi Myoldcat,

You might find the following of interest........... foundationforpn.org/vitamin...

I also read somewhere a plant bassed diet helps.

Myoldcat profile image
Myoldcat in reply toJillymo

Thank you so much Jillymo x

MrsTuft profile image
MrsTuft

Thank you - this is exactly the sort of thing I meant. We know we need all the nutrients. We know the cofactors for B12 and that b vits work in combination. That we need to keep ferritin up, etc. But there is info out there about how other specific nutrients can help heal damaged nerves. This is great. I knew vitamin d is important for autoimmune illness including MS but I didn’t know it helped this way specifically. Great!

Galeflower profile image
Galeflower

Thank You for the article Myoldcat, A vitamin D Wellness group on FB says to begin with 5,000mg D3 and 100mg K2 for a week and then progress to 10,000mg D3 and 200 K2mg for optimum D3 levels. I have severe demeylination and nerve damage in my head from 4 years of undiagnosed PA. I also just had a bone density test and am inching closer to osteoporosis and am definitely osteopenia, so this article seems to validate my need to up my dose of D3 in order to facilitate remyelination..(however you spell it).

Myoldcat profile image
Myoldcat in reply toGaleflower

I'm doing the same protocol, but won't know the outcome till next blood tests.

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