Setbacks: Hello everyone, I have AAG. I... - Pernicious Anaemi...

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Setbacks

Canadian77 profile image
10 Replies

Hello everyone, I have AAG. I have been injecting B12 EOD for almost a year and was feeling better.

Last 9 days I have dull stomach pain, Indigestion type feeling. I tried DGL, aloe ect

How long do your setbacks last? Any advice appreciated, GI says to take PPI

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Canadian77 profile image
Canadian77
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wedgewood profile image
wedgewood

As you have Autoimmune Gastritis , sometimes called Pernicious Anaemia , you will have low or even no stomach acid. ( Hypochlorhydria/ Achlorhydria. ) PPI s are Proton Pump Inhibitors which will lower your stomach acid even further .

With low stomach acid , bad bacteria can take over and will cause problems like stomach pain and bloating . Stomach acid is so important in keeping our stomachs as free as possible of bad bacteria.

You need to encourage good bacteria back into your gut . I did this by taking kefir ,which is a fermented milk . I even make my own now , by the traditional method with so-called “grains” . Probiotic capsules are also used , but I prefer the natural products . Yoghurt , sauerkraut and kimchi are also excellent. You could also take an acidic drink with your meals . i.e. diluted Apple cider vinegar .

If you do try the above remedies , and they do not help , you will have done yourself no harm. That’s important. I hope that you get other suggestions .

Best wishes .

Canadian77 profile image
Canadian77 in reply towedgewood

Thank you very much for the reply. I have drink Kefir, and eat sauerkraut , I also have betaine with my meals.

Don't know how to deal with this flare up

Are setbacks normal?

wedgewood profile image
wedgewood in reply toCanadian77

It is quite common , when treatment first starts , for patients to get worse before they get better . It’s called “ Reversing out” . But , you had already improved so much , so that is unusual . Let’s hope that it’s just a “blip” and will soon disappear. If you do decide to take a PPI , I would only take it for a short time . . .

Canadian77 profile image
Canadian77

Yeah I am almost a year into B12/ folic acid

I think I got too brave, started eating chips, cookies, drinking alcohol

Maybe that did me in

wedgewood profile image
wedgewood in reply toCanadian77

Yes, that could have caused the upset . Get back on track asap . Good that you have figured it out. Very best wishes in doing that .

Sunvalley12 profile image
Sunvalley12

I’ve been at this a year. My gut is my worst symptom when I have flareups. I take a probiotic called Florastor that’s been around for decades (US) when I have an issue. I’m thankful I consume no alcohol as I’m sure that would cause me great distress. I too got worse before my host of symptoms improved. Hope you get more suggestions.

Canadian77 profile image
Canadian77 in reply toSunvalley12

Hi thank you for reply. Have you been injecting B12 for a year?

Sunvalley12 profile image
Sunvalley12 in reply toCanadian77

No, six months and it seemed to be a game changer for me. Provider told me I didn’t need to take oral dose everyday any longer due to high level. That’s when I started getting an education about B12! That was a mistake in care, I really went downhill. This forum was great support in those dark days.

Litatamon profile image
Litatamon in reply toSunvalley12

There seems like there are a couple of varieties of Florastor. Which one do you take? Thank you

Sunvalley12 profile image
Sunvalley12 in reply toLitatamon

I buy the box with 20 capsules as I only use periodically. 500 mg Saccaromyces boylardii.

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