A Happy New Year to you all - and Good Health for 2025
Advice please.
I do not have a diagnosis of B12 Deficiency but I am continuing to SI B12 injections EOD as prescribed by my GP for the past 20 months and have had considerable improvements during this time. However at the end of October 24, I went down with a nasty viral infection after which I had Oral Thrush and then was diagnosed with Covid. This has knocked me sideways and I am still trying to recover from this. I do now feel that when I inject - it is only taking up the slack and not giving me B12 to move forward with.
I m still suffering with a good deal of Parathesia in my feet and legs and get burning patches on my feet and sharp pains in my legs on the inbetween days. As well as still suffering fatigue and brain fog - lack of concentration, and feeling low which has increased since being ill in October 24.
Because of this I am wondering if I should either order some extra B12 Ampules, to give myself possibly every day injections for a while in order to boost my B12 or can you please tell me if anyone has experience of B12 Patches that I could use on the inbetween days and if this might be a successful way of increasing my B12 intake.
I have never ordered B12 privately so would be grateful to have some advice regarding the best and most economic way to do this please as I would not want a vast quantity but something in addition to add to my EOD prescription.
I am supplementing with B Complex which has 400 Folate and an extra Folate 400 as well as Vitamin D 1000 per day .
My Last Folate BT on 12/11/24 was 17.4 (2.1 - 26.8)
Vitamin D 94.5 on 12/11/24
I understand from the Dr Klein - video that in order for B12 to give full effect an optimal Folate of 15/20 is required.
I realise just how lucky I am to be getting the EOD B12 on prescription.
I would be grateful for any advice you can offer please.
Many thanks
Lemondrizz
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Lemondrizz
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I do not have an official diagnosis - but I had all the symptoms on the B12 Deficiency list
Some of these have now eased - but the fatigue, burning pains in my feet and shooting pains in my legs have returned since the Viral/infection/Covid - it is just very disappointing to have such a set back as I had been a lot better generally. I am grateful for the information on the patches - I did not find the Oral B12 helpful - having tried this previously to top up.
I guess that you are right - that I will just have to be patient and learn to do less. I certainly find that if I try to do more - I pay the price !!
Some years ago I read that sublingual B-12 can not be absorbed orally because the molecule is too large. BUT that it can be absorbed via the nasal passages. I've been experimenting with stretching out my B-12 injections at the request of one medic, and I'm crushing and dissolving in saliva my sublingual B-12 and using my small finger, applying it to the inside of my nose. I'm getting a lot of benefit from this. The reason for the saliva is to get the pH correct for it to be absorbed.
Yes, the patches have helped me some. I used to use them in between when I was having symptoms. I finally just started injecting more because the injects did so much more.
Firstly, I hope you are feeling well and things are getting back to normal.
My wife and I started on this B12 adventure in July of last year. She started experiencing neuropathy and having difficulty feeling her legs and walking, following some traumatic events. She was 51 years old and using a cane and still barely able to get around! Not an insult towards doctors, but most know very little to nothing about the effects of B12 deficiency.
We visited our GP, a neurologist, and a pelvic floor specialist and nobody thought to check her B12 level. They gave her test after test...MRI, CT scan, EMG, etc... They gave her antibiotics, antiviral meds and declarations of possible MS, autoimmune diseases, and possibilities of tumors causing her symptoms.
I should mention that we live in the US.
Everything we found online mentioned B12 deficiency. We finally got our GP to test her levels and she was on the bottom side of "normal" and that was the end of it. We changed GP and my wife was finally tested and diagnosed with the MTHFR gene mutation. During all this, we started on cyanocobalamin and saw no improvement and then switched to methylcobalamin and had immediate results. We finally settled on 1000mcg daily injections. We tried to go to a 5000mcg weekly shot, at the recommendation of her pharmacist to try to save money, (compounded meds are expensive) and her symptoms began returning, so we switched back to the daily injections.
A lot of what I read also said that you can have a normal B12 level (seemingly no deficiency) and still have symptoms of deficiency. This is because, while you have plenty of B12 in your blood, your body may not be using it because of other reasons...MTHFR mutation, other methylation issues, other deficiencies, etc.
It's been a long journey (4 months of almost daily injections) but it's great to hear her go on about something as simple as feeling her entire foot; or being able to feel the floor under her feet!
I said all that to say this, do whatever you can and need to do to keep taking your B12! I found places online that will prescribe it with a "telehealth" visit. I would encourage you to stay on the "large" doses until you get back to "normal," (whatever that is.) Go into a maintenance dose only after you are what you feel is normal. Only daily doses worked with my wife, but we're all different. She also experimented with capsules and sublingual drops and nothing helped like injections.
Finally, you must be your own advocate for your health! Please don't let them tell you that everything is OK and your levels are normal. Only you know how you feel and what works for you.
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