Hot summer

[PlatypusProfit8077]

Far out, it’s the first truly hot day of our Aussie summer (37°C) and I am struggling so much.

why are hot days so bad?

Any tips aside from hide in the house and stay hydrated?

[Nackapan]

I need little and often food .Blood sugars can drop in the heat if susceptible.

That can greatly affect my balance.

I don't need any more B12 just eat differently.

I also hide in the shade 😎 and do chores very early a.m and drink water throughout the night.

My tolerance if heat has got worse with B12 def /PA .

As has my daughters .( 33)

She generally very dependant on environment temperatures.

She describes it as a faulty body thermostat now.

She used to thrive/ tolerate hot temperatures naturally. Not now?

Do not know of any reasons of for this.?

[PlatypusProfit8077 in reply to Nackapan]

Thanks Nackapan, a faulty body thermostat sounds like me. My Raynauds has been playing up awfully as well, it usually subsides a fair bit after winter

[JanD236]

Come to the UK! 😂

[PlatypusProfit8077 in reply to JanD236]

Sounds reasonable…. 😂

[Technoid]

Visit and take the weather with you please

m.youtube.com/watch?v=ag8Xc...(Not working as expected?)

[PlatypusProfit8077 in reply to Technoid]

Haha if only!

[PlatypusProfit8077 in reply to Technoid]

And 37° is considered a mild start to the summer. We will hit 40° regularly by mid-December

[Technoid in reply to PlatypusProfit8077]

That's too toasty though, you can keep that 😅

At least the US is now going to take decisive action on climate change though. Oh wait.

[Motheroflittle]

Hi PlatypusProfit8077, I have the faulty body thermostat too. I really dont have any tips other than I sleep with a soft ice pack wrapped in a towel. I wrap a wet cloth around my neck if I go outside. I always gravitate toward the shade & carry ice water. The B12 shots have not helped with this issue. Its difficult, I have always loved the ocean, beach & sunshine. My "thermostat" broke about 30 years ago. I fainted on the beach while in Jamaica. Ever since then, it has slowly gotten worse. If anybody knows what causes this please speak up.

[PlatypusProfit8077 in reply to Motheroflittle]

Sorry to hear you’re also having this difficulty! Mine is only recent (this year) so I’m not enjoying the learning process

[Motheroflittle in reply to PlatypusProfit8077]

Sorry you are too. It's terrible. I was in my 30's so not menopause and no medications. It started around the same time my vertigo appeared. I was very slim so not a weight issue(unlike now😅). I had just been diagnosed with PA but no treatment. I have thought maybe thyroid but tests were OK. I dont sweat enough. I overheat if the shower is too hot, if the bed gets to warm or if I sit in a warm car to long. I also have exercise induced asthma because of over heating. I turn red & cant breath . I just deal with it best as I can. We have seriously discussed relocation. The southeast US where we are, has VERY hot & humid weather.🔥

[Sunshine1932]

I would love to know about a broken thermostat also. Mine broke about 3 years ago and I have blamed it on possible 3 things. Medication, Covid jab or maybe I'm peri menopause but most women I speak too say my overheating sounds different to a hot flush. I thought maybe the covid jab as it started around the same time plus I was also put on new meds. I hate it and nothing seems to cool me down. I have called it a dodgy thermostat. It would be amazing if someone had any idea what it could be so I can fix it.

[MrsTuft]

My neurologist said that heat intolerance is common in various neurological illnesses. Certainly it’s my experience too. I used to love the sun (I lived in the Middle East!) and now it makes me feel exhausted and affects my strength in my legs. I just have to try to hydrate, sit in shade, use fans etc.

[PlatypusProfit8077 in reply to MrsTuft]

Interesting! I wonder why neurological illnesses have this in common. I know it’s common for MS to have heat intolerance as well.

[Asselchen in reply to PlatypusProfit8077]

I've once seen an article, but can't find it now, that explained that stimulus conduction works differently in warm temperatures, hence neurological symptoms can get worse then.

[Nackapan in reply to MrsTuft]

Yes and some seem to have this inherentlyI did and its just gor worse.

My daughter loved the sun and it was good for her as 'Gilbert's syndrome ' found by chance on full bloods.

Since PA/ b12 deficiency that's all changed.

Her autonomic system damaged .

She struggles big time in heat and the cold . Very dependant on the environment lije a newborn.

She's young.

Menopause flushes and sweats very different.

I remember trying to explain this to several doctors who blamed this.

A damp t towel on my neck .

Big hat.

Sips of fizzy sugary drinks ( only time ever had )

Feet in a cold bowl of water works wonders.

Not always easy!!

I really struggle in high temperatures too.

At least in most cases you can warm up in the cold.

Layers for the cold and cover your head and hands .

I remember my nan works a knitted wool hat indoors . Old habits .

Every winter.

I was given a diagnosis of raynauds once . I think incorrect ??

House was just too cold as only one heater to plug in.

A freezing winter.

Wool the warmest socks with newspaper lined shoes .

And keep moving !

Interesting what the neurologist said.

So true.

[Suzibelle]

My thermostat broke well and truly with menopause and has never recovered, although I don't know for sure it was menopause as I was hit with PA at the same time. No recommendations different from anyone else, although I have to have a small fan blowing on me at night to be able to sleep in summer. The upside is that I don't seem to feel the cold quite so much in winter. Greetings from FNQ where it's the Dry season and heading into the build-up for the Wet, when the humidity just compounds the broken thermostat issue!

[PlatypusProfit8077 in reply to Suzibelle]

Ah I’m in south-western NSW so very hot and usually very dry.

I’m 36 so maybe it is perimenopause? Although my doctor didn’t seem to think so and it’s not hot flushes but rather a really strong heat intolerance.

[Nackapan in reply to Suzibelle]

Humidity awful. TC

[ClaireWF1346]

A cold, damp towel draped on the back of your neck - worked wonders for me in 40 degrees before. And definitely a hat!

[LauraJane2]

I used to love the heat (not 37 though, that was always too hot!) but I don’t cope very well with it since a couple of years ago. I have assumed it is down to my low blood pressure but who knows.

I have to stay in the shade/indoors and do very little, but I realise that’s not really possible if it’s for more than a couple of weeks.