So I thought I would finally post my recovery on here. I’ll backtrack a little bit. Some of you may remember in 2010 I was in a car accident and I had undiagnosed cervical/ jaw dystonia for a decade and my B12 issues started then, pernicious anemia runs in my family and I never felt the same after that day, never had energy etc . In August 2020 I hit my head and was off work for eight months with a concussion and at that point, my B12 was at the worst it’s ever been. It had gotten to 3 1/2 doses per day b12 just was not working. I got to the point where my doctor thought. I had a psychological problem with B12. I started working with a functional medicine doctor and explained that I felt I was having hormonal issues that will happen with age for women, but it will also happen from a concussion. I was basically depleted of all nutrients , and my body just wasn’t working good. I had diarrhoea every day for like six months, my stomach never made any noises. I was starting to get tingling/burning in my hands, I lost tons of hair. My arms were really weak and those Issues I knew was not the B12. I had many more symptoms that I can’t even think of right now but my biggest concern was my B12 because I know of all the ignorance that goes along with B12 deficiency. We started with pharmaceutical grade supplements. We use the brand, Metagenics and really it’s basic supplements, zinc, omega’s probiotics, vitamin C, b complex and a couple of magnesiums, one with electrolytes and then L-carnitine. it took me about three months, where I literally was going out of my mind. My neurotransmitters were all over the place. I was super scared, but at the three month mark, I finally felt relaxed. My stomach started making noises again, and I was finally in rest and digest. I even shocked my osteopath. She’s known me since hitting my head in 2020 and she always felt a buzzing from my nervous system when she would treat me and that was completely gone and at that point as soon as I felt relaxed, I was able to do weekly B12 shots. functional medicine works to get your bodies processes working ,you get the liver working good that is what I believe helped my B12 the most. I was having normal bowel movements multiple times per day no more diarrhea. I’m still working on my hormones, but I do believe the nervous system is what was making my B12 shots not work. So I am living proof that I don’t have to have daily shots and the body is capable of healing itself. I know there are some people on here that don’t believe in natural medicines but feel free to ask any questions. I also want to add that especially the first like six months. I was very strict with my eating no condiments, I wouldn’t have anything from a package or bottle and made my own salad dressing wouldn’t even have cereal I switched to oatmeal and made sure to have a protein, carb and healthy fat at every meal. I also reduced my screen time, especially in the evenings and did as much relaxation as I my cortisol levels were all over the place. I do believe that my cortisol levels which were too high some parts of the day and then too low and other times of the day contributed to my B12, not working as well it was affecting my nervous system, which was affecting my liver, etc.. I also want to add that I feel the most energy and the best I’ve felt since prior to that car accident in 2010.
Recovery: So I thought I would finally... - Pernicious Anaemi...
Recovery
Hello Swift20,
that's such a Blessing. do you have PA.? did you have any long term neuro symtoms that took a while to resolve.? well I hope all stays well with you. yes fresh food is the best. I also have a bad tummy and I'm pretty limited on what I can eat so far.
Thanks! Never officially diagnosed with PA and I will not put myself through the ignorance of specialists that don’t understand B12. And yes, in 2011 I literally thought I was going to die from all my symptoms. I tend to get many of them and was never treated with loading doses back then and I suffered. I’m lucky though that most of them go away with proper treatment, but I have always had nerve pain in my left foot that comes and goes.
Your resilience, courage and perseverance is inspiring! So glad that you have finally found the key to your B12 puzzle.
I'm only 2 months into my B12 recovery and struggling. I can't understand why I feel so anxious and emotional for most of the day, but my symptoms ease completely in the evenings. It can only be cortisol. I also have total loss of appetite. Obviously my own key to the puzzle will need to be found.
Thanks for posting your positive news!
Good on you for having what it takes and finding what it takes for you to heal!
Thanks WIZARD6787!
Thank you! It was hard work but has paid off! Your symptoms in the evening do sound like they would be cortisol related, I usually find B12 symptoms get worse in the evening like nerve pain, burning, twitches, etc. could also be your neurotransmitters, causing your emotions to be all over the place.
So happy to read your recovery story! Can I ask if you are in the US? Your functional medicine doctor sounds amazing! How did they know which supplements to use? I’ve been seeing a nutritionist since last November and taking supplements as well but I haven’t been able to switch back to rest and digest yet. I’m burning through my B12 like crazy. I haven’t been the same since having COVID in late 2021. Also post menopausal so not sure it that is not helping myself situation.
Thanks! I’m in Canada, but she does do virtual. Let me know and I can send you a link to her website if you want. she does have you fill out a lot of paperwork,questions on symptoms, etc. so that is one way of trying to figure out what is wrong with the person and then there’s also testing, but you kind of work with whatever your budget is and what you can afford. Ah postmenopausal that would make sense because from my understanding now it is just your adrenals that are making your sex hormones so could possibly take them longer to get back into rest and digest.
Being normal after symptoms
B12 recovery question
B12 loading
NHS Patient Rights
