When neurological symptoms and back& hip pain go away?

[Kat_88]

I have been under treatment (injections) for almost a year now and doing generally much better than last year when I had a collection of symptoms and pains. Although not diagnosed with PA (they said you don’t have it) I was low for years and did not care till all symptoms showed up all of a sudden last year (I am pretty sure that taking a high dosage of Folic made things worse without taking b12). Anyway, I still get tired sometimes soon, and if I have a busy day back pain and hip pain show up! And some needles and pains! I am wondering do all these go away?! I’m just 36 and have many activities on my to-do-list but sometimes my body tells me I can’t and rest :/

[Narwhal10]

Kat_88,

Unfortunately, this and hypothyroidism can be regarded as an Energy Limiting Illness. So, to live with it, you plan, you work SMART, you do not stress the small stuff. You learn what is important and what is not. Your energy and your body. For us, one of the hardest things are our relapses. When we crash.

Recently, I was at a meeting and the word housework came up. I just said, Not on my agenda. I do the bare minimum. With socialising, think of, Gracing people with your presence. If you can delegate or postpone a task then do it. There is also the wonderful word of NO.

My gran has the attitude of Must Keep Going. She also has Alzheimer’s Disease and asks, What are we doing now ? So being superbly cheeky, I reply, Sitting on our bottoms, drinking and enjoying our tea. Then we are watching that quiz show on TV.

Relaxing is an art form and must be performed in style. Our bodies are not 24/7. The Nervous System has a specific mode called Rest and Digest - the parasympathetic nervous system. It is when our body repairs and regenerates itself.

🦥

[Kat_88 in reply to Narwhal10]

Thank you for your response. I realize I needed to hear all of it. I often feel like I'm lagging behind in life, and I rush into things, only to find the outcome worse than expected. Mentally, I need to accept that I have to slow down at this stage of my life and approach things SMART. Thank you once again for your kind words and suggestions. Relaxing isn't always in my mindset, even if I pretend otherwise

[Grygran]

Every other day injections relieved many symptoms for me (brain fog, balance problems, pins and needles) but not the back, hip and leg pain. I could not turn over in bed, walking was painful and even relaxing hurt.

After two years I tried daily injections. The pain started reducing after three days and was gone in two weeks. Those pains have never returned .

I still inject daily. I have some unresolved symptoms (numb feet, facial twitch, blurry eyes, bladder issues) so I do not plan to reduce frequency.

Just keep going with your treatment and don’t be afraid to increase frequency, you cannot overdose B12.

[WIZARD6787 in reply to Grygran]

Thank you for sharing! Helps me to know that somebody can experience positive change quickly as I have.

[Kat_88 in reply to Grygran]

Thanks for the encouragement

[lb9999 in reply to Grygran]

Can you share more about bladder issues. I’ve been SI daily for a year and a half and have recently been experiencing terrible back pain and burning. I’ve have been dealing with overactive bladder for awhile, but now having some loss of bladder feeling and unable to ueiante much at night.

[Grygran in reply to lb9999]

Hi. I haven’t put this into words before,so bear with me.

Urination is difficult about 90% of the time.

(I am female, 67 years old)

I can tell I need to wee, but sit down and nothing happens. Or flow starts but is slow. No blockage because sometimes it works normally. I have strategies that are partially effective - breathing exercises as in childbirth, jiggling, standing up and sitting down again. I don’t have any incontinence or leakage.

These issues have been going on for years before I discovered I was B12 deficient and I don’t feel B12 protocol has improved them.

[lb9999 in reply to Grygran]

Thank you for sharing. I’m sorry. I know how difficult this is.

I’m 42 and have similar issues. I have been dealing with overactive bladder for a couple of years now, but the difficulty to urinate has gotten more often. Although, I have been self injecting for a year and a half. When I first began I got my injections (I’m in USA) at a clinic that did 5,000mcg per day. I didn’t have bladder issues for about six months.

Have you found a connection with higher or more often B12 and lessening of symptoms?

Mine also seems to get worse when my back pain and sciatica flares up. Or maybe it’s just the B12? I had been weaning down my injections from 1,750mcg per day and two B12 patches to 1000mcg-1,200mcg per day and then is when I have been getting worse.

How much B12 do you use if you don’t mind sharing?

[Grygran in reply to lb9999]

I inject daily using Pascoe ampules - they are 1500ug which I think is the same as mcg. I also take 5mg folate daily as well as a B complex, an A-Z vitamins and minerals, Vitamin D and K2 .

I think my remaining issues are down to nerve damage during the years I was deficient. It took 2 years SI for my back, hip and leg pains to resolve. I am usually pain free now.

[MrsTuft]

2.5 years of daily treatment stopped the pains but covid has just knocked me back a bit again. I just keep treating. And pacing as Narwal said. x

[Narwhal10 in reply to MrsTuft]

Oh MrsTuft,

Sorry to learn. COVID is a swine. Hope you get better soon. x

I hope Kat_88 tries Grygran’s advice of daily injections.

[MrsTuft in reply to Narwhal10]

Ty ❤️

[phoebegrant]

Have you had Vitamin D level checked? I had to treat that at the same time as the B12 deficiency. It was more than six months into treatment before I noticed I could stand up without immediate pain.

[Kat_88 in reply to phoebegrant]

Not recently but i take daily vitamin D for months now! Thanks for the advice