I have been told I should post my recent bloods on this website after posting them on the Thyroid one.
Extract follows
Hi AllI’m new to this site. I seem to be experiencing classic thyroid related symptoms. Sensitive to cold (below 21 degrees ish) Chills even on a hot or very hot day . Goosebumps . So if exercising in the sun eg riding my bike this can be a problem as goosebumps stop you sweating! Weight fluctuates And others I’ve had numerous thyroid function blood tests done by my GP all normal and so no other tests were carried out . (No matter what I said) other than a B12 test recently so : I paid for a full thyroid test through Medicheck and the results are
Ferritin 114 (30-650)
Folate Serum 5.5 (8.83-60.8)
B12 Active 55 (25.1-165)
Vitamin D 62 (50-200)
TSH 3.44 (0.27-4.2)
Free T3 5.7 (3.1-6.8)
Free Throxine 17.4 (12-22)
Thyroglobulin Antibodies 13.8 (0-115)
Thyroid Peroxide Antibodies 8.3 (0-34)
CRP HS 0.68 (0-3)
The written reports Folate as low and B12 as a little low otherwise all ok. My GP recently tested Folate & B12 so I knew about that .
GP recently tested and reported
Folate Serum 5.5 (8.83-60.8)
B12 Active 55 (25.1-165)
Serum Vitamin B 12 106 (180-1000)
The GP told me to start taking B12 tablets so I have ; I’ve been taking them for about a week or so.The Medicheck physician suggests Folic Acid tablets
I suspected my thyroid or pituitary was playing up. I had a meningioma removed in 2015 this was originally diagnosed incorrectly as a Macro Pituitary Adenoma .
I’m feeling / exhibiting classic thyroid related symptoms. Intolerance to cold: shivers when it’s hot . Fluctuation weight etc etc
My body is telling me something is not right .?
Written by
MrPump
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Find the local B12 deficiency guidelines for your ICB (Integrated care Board) or Health Board as GP is likely to refer to these when diagnosing and treating B12 deficiency.
CCGs (Clinical Commissioning Groups) in England were replaced by ICBs in July 2022.
I hope you are not in the UK area discussed in blog post below....
If you click on "project documents" then on "consultation comments and responses" it gives a good insight into current issues around diagnosis and treatment.
B12 article from Mayo Clinic in US
The Many Faces of Cobalamin (Vitamin B12) Deficiency
Table 1 in above article is about frequent misconceptions about B12 deficiency that health professionals may have.
Got to go out but have a look at threads below..
Links to forum threads where I left detailed replies with lots of B12 deficiency info eg causes and symptoms, more UK B12 documents, B12 books, B12 websites and B12 articles and a few hints on dealing with unhelpful GPs.
Some links may have details that could be upsetting.
There are other forum members from the same area on this forum. Maybe you could start another thread discussing treatment in your area, I'm sure you'll have others joining in.
Your area is due to review its guidelines so keep an eye on them as sometimes they change without much notice. The change from CCGs to ICBs and the fact that NICE will publish new guidelines on B12 deficiency and PA in 2023 means many local B12 deficiency guidelines are likely to be reviewed over next year, hopefully for the better.
Would you like me to post a direct link to your area's guidelines?
Threads from this forum can appear on NHS website.
You could change the setting of your thread to a more private one, where only visitors to this forum can see it.
To do this
1) Go to original post, click More then click Edit.
2) Scroll down post to Share, click Community Only then click Post.
Have you considered talking to your MP if unhappy with treatment?
If your GP is not treating you adequately and you have neuro symptoms, it may be worth discussing SACD with them.
I am not saying you have SACD, I'm not a health professional but I am saying that your doctors should know that SACD, sub acute combined degeneration of the spinal cord is a potential consequence of B12 deficiency if treatment is delayed or inadequate.
Mentioning SACD is a letter or conversation may make them take more notice of you, sadly could irritate them as well.
If's very hard sometimes to challenge doctors but can be necessary. Be prepared for relationship with GPs to come under strain as some do not like being challenged however politely it is done.
I suggest putting queries about treatment and diagnosis into a short, polite letter as harder to ignore. See letter writing link in my first reply
When you have the time and energy, have a look at the last thread I linked to at bottom of my first reply. It was started by someone with neurological symptoms.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
High Active B12 - what does it mean please? What shall I do next?
IFA negative, Low Active B12 - advice please. 
Doctors said I'm normal but I feel far from it!
thyroid problem blood tests reveal low folate?
