Is self injecting everyday safe? - Pernicious Anaemi...

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Is self injecting everyday safe?

Rshpreet profile image
18 Replies

Hello my dear friends,

Im new here and i need advice please.

My B12 level was 139 when checked first time 4 months ago. I have all the neurological and other symptoms.

After diagnosis, i took oral suppliments for two months, it worked initially and i was doing physically demanding work.

But i was extremely breathless after three months. So i started self injecting 1ml cyanocobalamin everyday since 1 month.

My breathlessness eased a little bit but not fully.

My neurological symptoms return if i don’t inject everyday.

I want to ask, is it safe to self inject everyday?

if yes then for how long?

if no then What should be the proper way to treat it?

i’ll appreciate your replies. thank you.

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Rshpreet
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18 Replies
wedgewood profile image
wedgewood

You can stop worrying immediately ! I’m glad to tell you that you cannot overdose on Vitamin B12 . Read the information I from “ Stichting B12 Tekort “ in the right hand column of pinned posts l Cynocobalamin works fine , but Hydroxocobalamin should stay in the system a bit longer , so use that instead if you are able to get hold of it . Absolutely no harm in injecting every day , Are you also taking a daily folic acid tablet of 400mcg ? This works together with B12 . . Now this vitamin ( B9) can be overdosed , unless it is in food ( leafy green vegetables , peas best in source , but also in other fruits and vegs ) You may be able to lower your injection rate after a time if you get rid of the symptoms. But if you have been deficient in B12 for a long time without sufficient treatment , some symptoms may be irreversible . This happened to me . . I hope that you get other posts that will put your mind at rest , Best wishes to you .

Rshpreet profile image
Rshpreet in reply to wedgewood

Thank you for replying @wedgewood

Im taking 5mg folic acid daily.

although i never got it tested.

I was afraid that injections will consume my folate levels.

Im using cyanocobalamin because i couldn’t find hydroxocobalamin anywhere in vancouver.

wedgewood profile image
wedgewood in reply to Rshpreet

I think that 5 mg of folic acid is really excessive if taken for long . 400 MCG ( micro grams ) should be plenty . Overdosing on folic acid can be harmful . and cause neurological , symptoms. Cynocobalamin is fine , and will not consume folate levels . Hydroxocobalamin could be injected less often , but probably not obtainable in Canada . Cynocobalamin seems to be the choice for injectable B12 on North America . Stay in touch and tell us of your progress .

Rshpreet profile image
Rshpreet in reply to wedgewood

i will cut down on high dose folic acid and get it tested as well.

You guys are doing really good work.

Thank you for advice :) :)

ACritical profile image
ACritical in reply to Rshpreet

I advise to check folate, vitaminD magnesium levels by way of blood-test first and go from there. Too much or not enough can cause you to feel ill, in my experience.

Rshpreet profile image
Rshpreet in reply to ACritical

@Acritical

thank you for replying.

Yes, i’m going to stop supplimenting first and get it tested after a week.

ACritical profile image
ACritical in reply to Rshpreet

Good idea. Be careful with advise given. Wedgewood is giving you the right advise. Just because as some people make you believe they are only or just vitamins ... they work in balance with each other, too much of one depletes the other etc. I have had problems taken supplements, they aren’t always containing what is says on the box. Sometimes people take various supplements at the same time , which need to be taken 2 or 4 hrs spaced out for instance.There are many horror stories to be read on these chat sites. So do the right thing. Research, not on sites where they want to sell you products, but do it like you would do at college/ uni. You only have one body, be careful with what you put into it. Supplements are no hard drugs but they can still do harm.

Rshpreet profile image
Rshpreet in reply to ACritical

Yeah it totally make sense. i was following that facebook group but i was skeptical about 5mg folic acid, im glad i stopped before its too late. This group seem lot more intelligent to me. :)

waveylines profile image
waveylines

I inject twice daily & like you had many neurological symptoms.....still some persisting. Recently wrnt on gluten free diet and this has made a massive difference. Good idea to take a basic b complex with folate rather than folic acid.

Rshpreet profile image
Rshpreet in reply to waveylines

Thank you @waveylines

i will try gluten free diet and switch to low dose folate.

How long u been self injecting?

waveylines profile image
waveylines in reply to Rshpreet

Two years. Hope the b complex and gluten free helps you. Not everyone finds gluten free helps but worth a try.

Jengastar profile image
Jengastar

Yes I inject daily and it’s been fine. I alternative thighs and where I inject. Hope you improve soon. I will keep trying to cut down, just for cost of it really, but each time so far I have felt tired on the second day.

Rshpreet profile image
Rshpreet in reply to Jengastar

thank you for replying.

Well, im injecting daily since month.

But the thought that i’ll have to inject everday for years, kinda scares me. it feels like im not normal anymore. im 26.

Jengastar profile image
Jengastar in reply to Rshpreet

My stepson is diabetic and injects 5 times a day and so once a day for me didn’t seem too bad! I just do what I need to do to feel as normal as I can and if that’s injecting everyday I don’t really worry.

Rshpreet profile image
Rshpreet in reply to Jengastar

@jengastar

5 times seem really hard. He’s really a warrior.

How long you’ve been injecting?

Did you also had breathlessness as symptom? its been one and half month injecting and i still have breathlessness.

Jengastar profile image
Jengastar in reply to Rshpreet

I have been daily injecting since May 2020. I would be breathless coming up stairs but fatigue, pins and needles, depression and joint pain have been more my symptoms. I felt the difference in about 5 days and over the next few weeks I got about 80% recovered. I am still working with private drs and nutritionists to work out the last 20%. Some days I can do bit of running or a long walk. Still bit breathless on hills but that could just be my lack of fitness after two years being very ill!

Rshpreet profile image
Rshpreet in reply to Jengastar

Thank you. @jengastar 🙂🙂

olicana1949 profile image
olicana1949

I would say you need to get the breathlessness checked out as a separate symptom from B12 deficiency.

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