The NHS is drowning itself in its own bureaucracy and inefficiency! It is creating so much stress and duplication of everything that must be costing a small (no make that very large!) fortune and achieving nothing.
Good to see that you are now able to stand up and fight it though! Jane
The NHS has to work “ globally” and no-one gets a B12 injection more often than once in 3 months ? . I’ve honestly never heard of such nonsense. How can anyone working in a NHS surgery utter such rubbish ? Should be reported . I’m glad that you can stand up to such nonsense , but it’s so stressful for you .
Hello Nackapan, 'working globally', rubbish . This 3 months is llke a mantra, I'm sure they have all hypnotised themselves, and as PAS and Tracey Whitty says there is no clinical basis for it.
Extraordinary,: administrative staff and district nurses overule the gp, and patient not advised.
Well done for handling that call so well, it is so frustrating when things like this happen. I honestly don't think they realise how much impact it has on our health they are messing with it all the time with no thought. Hope it is finally resolved for you
Sorry it’s all toing and froing. I’m with wedgewood on this one. Told my GP partner that I self inject in writing. What can they do about it ?
BIG FAT ZERO IS THE ANSWER.
I prefer my 3 monthly appointment go to someone else. But it’s not on your records, I hear you cry ?
Erm, slight problem with that.
Oh, yes it is.🎭
That’s the way to do it.
Blood test at time, date, place.
Result time, date, place.
Ordered by time, date, place,
Analysed by time, date, place, sometimes type of machine.
First injection by name, time, date, place.
Second injection by name, time, date, place.
Third injection by name, time, date, place.
Fourth injection by name, time, date, place.
Fifth injection by name, time, date, place.
Sixth injection by name, time, date, place.
Shock horror - that’s just 10 records for loading doses. 😉
The letter was ANOTHER record. 😈
This does not include the pharmacy ordering side of things where GPs order from pharmacies. They have a system, they have their own system where hydroxycobalamin will have our name on.
There will be time, dates, pharmacists names on each separate type of item.
Well this new power balance is working out just as expected.
How can a pharmacist override a GPs decision re treatment that has been recommended by a consultant ? They were party to none of the appointments, tests and examinations that led to this decision .
If the chemist computer says "No" for whatever reason, surely the answer would be to double-check once with the surgery, just in case an error in frequency or strength has been made- and then enter the data that will stop the computer from alerting about this particular decision ever again.
Or just turn it off and doublecheck the work in person !
"Exceptional circumstances" - can't you try to be a little more uniform to make the chemist computer's life a little easier ?
I applaud your patience, and wonder who will apologise to you on behalf of the chemist computer, since the computer appears to be shouldering the blame here ?
It seems that, increasingly often, there is an attitude that, if you don't apologise, you don't need to accept the blame -and can therefore be affronted.
I don't know why. It seems cowardly, immature.
I'm going to blame Boris and Donald, for setting such bad examples. They will refuse to accept it of course.
I doubt very much anybody will ‘apologise’. The doctor will be pointing the finger at the pharmacy, the pharmacist will be pointing their finger at the computer.
Nackapan, is having this upward battle again and again and again. The problem is:-
1) The computer packages.
2) The algorithm for PA/B12D was made and drawn up by a person(s) with not enough knowledge of the condition.
3) The algorithm has to take into account funding. So, treatment regimes are undertaken as cheaply as possible.
Me, I am trying to find out which language the NHS databases are written in.
Whatever Trust or Health Board, Nackapan is in, something will flag their frequency quite often. So, there are 2 options :-
i) The first, I have already advised, email the Data Protection Officer.
(They can override the Computer Systems to some degree).
ii) In writing, Nackapan can inform their GP that they do self-inject, where they import from, hydroxycobalamin, dosage, frequency of injections, sub-cutaneous.
After all what did Nackapan do for a living ? How long for ? Cor Blimey guvnor, did they work for the NHS ? 🙀
By admitting to self-injection is showing CANDOUR.
It is highly likely as part of the design and specifications of a computer package. The Software Engineer was TOLD to put :-
A _search_engine :-
(start.value)
Such as a ;
n>= 4
*per_YEAR.
count_?
end(os.system)
END.
So, your medication and frequency is flagged 🚩🚩🚩
It is not the doctor’s fault, nor the pharmacist’s fault, it is not the Software Engineer’s.
It is the person with the purse strings (aka Fat Cat) who asked a Mathematician to create an extremely lengthy algorithm to include certain parameters. Query hydroxycobalamin that is prescribed and collected more than “4 times a year.”
You have no evidence that the pharmacist was 'following orders.' I'd report anyway. and let the CCG look into it.
If she was just stopping treatment plans as a cost saving exercise, which is what the excuse sounds like, with no medical review of the patients that has to be against even shoddy NHS rules. They wouldn't take away insulin!
Omg another unnecessary stressful issue you've had to deal with when it could all be avoided. Glad you got it resolved.If you tally up the cost of all the effort, time, pressure, aggravation etc. etc. for yourself & the pharmacy too it doesn't make sense. Tally it up for all the people on this forum who have similar barriers/battles & the cost/benefit just goes out the window.
Good on you. My frequency was changed from 6 to 8 weeks with the new GPS. I've had such a protracted diagnosis etc. I just couldn't face the stress of challenging so I just SI in between. So every 4 weeks or as required. I was shown by the practice nurse how to SI safely. Hope you manage to maintain your frequency
so sorry to hear you’ve had all this again, especially as it’s been such an ill informed decision.
I know how exhausting the battle can be but I’m currently on the winning side although I’m just waiting for the time an admin person decides that my EOD SI prescription goes against what they think I should be having !!
So far they are following the consultants letters though and have even invited me in for a folate and ferritin test as per the letter!!
Good so far so good. I've been si with prescription for over 3 yesrs . Also got every othef day restarted after a 5 week horrendous gap after loading . Then went to weekly . Then 2 weekly for over a year.
Then bought my own in covid as surgeries in more chaos. .
And went back to weekly .
I coukd only take on the fight knowing I've plenty in stock from them and purchases.
Yes - I'm off to the GP tomorrow -and hoping we can have the conversation about calcium tablets, cholesterol and statins, rather than wasting my 10 minutes with the GP having been totally distracted by the inevitably high B12 result.
No guarantees.
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DON'T GIVE UP. YOU'RE CLOSER THAN YOU THINK.
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Doctor wiped diagnosis of PA off my file
Oral (passive) treatment of B12
B12 INJECTIONS not on my prescription
Facebook group misinformation on folic acid again.
