Does anyone know if there’s a connect... - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,983 posts

Does anyone know if there’s a connection between B12 deficiency and Raynaud’s phenomenon. I have both but wondering if they are connected?

11 Replies

B12 and Raynaud’s

Read more about...
11 Replies
fbirder profile image
fbirder

I, too, have both. But I've not been able to find any evidence that they may be connected.

Mine went after I started taking nifedipine for my blood pressure. But the drugs worked too well on the BP and I started getting hypotensive spells. I went off the nifedipine and the Raynaud's came back.

in reply tofbirder

Interesting thank you. I’ve got the pins and needles in my feet which I had right at the start of PA but then largely went. The only thing I’ve done differently over the last few weeks is increase injections from once a week to every two days so also not sure if that’s connected. I’ve got really tight muscles and it causes very deep pain in my back and shoulders (I think that’s what it is) and the increased injection regime was to try and alleviate that. Too early to tell.

Thanks for responding. I will see what happens.

Stay safe.

Sleepybunny profile image
Sleepybunny

Hi,

Found an article that you might find interesting

ncbi.nlm.nih.gov/pubmed/120...

in reply toSleepybunny

Thanks that’s really interesting. So no obvious link to B12 but a link with increased homocysteine. Which sort of makes sense. Not sure there’s much I can do about it. Definitely feel stress plays a part though so perhaps try to manage that down. Thanks again.

Sunshine1932 profile image
Sunshine1932

I have both and never found that b12 injections helped my raynauds.

Had Raynauds since I was a teenager.

fbirder profile image
fbirder in reply toSunshine1932

Actually, I forgot to mention. My Raynauds started up just after I started B12 treatment. I don't think they were connected, but mine certainly wasn't caused by a deficiency.

Sunshine1932 profile image
Sunshine1932 in reply tofbirder

I'm not sure what age you are but I was told raynauds starts early on in life as a teenager or later (mid life) whatever that means hahaha and perhaps quite possibly that means there is a connection.

I use to drink and smoke and when I quit my raynauds didnt change.

However I have just thought about a time when I was very poorly and underweight and my raynauds was at it's worse and this was before I started b12.

It's never been that bad but I have gain 1.5 stone since then. More meat to keep me warm.

I'm not helping much here am I haha.

As with everything b12 it's time and patience I guess.

in reply toSunshine1932

Thanks. I’m in my early fifties but always had cold extremities even when I was growing up.

in reply tofbirder

Yes I notice mine more since being b12 deficient.

Marz profile image
Marz

I have noticed many suffering with Reynauds on Thyroid UK Forum. Having one auto-immune condition can often lead to another - like Hashimotos - the most common thyroid condition globally.

Often testing of the thyroid is inadequate and rarely tells the whole story. Obtaining copies of your test results with ranges will enable you to monitor your own progress and check what has been missed ...

Am wondering if your Folate , Ferritin and VitD have also been tested.

Hopefully the extra injection will be helpful.

deniseinmilden profile image
deniseinmilden

I've wondered this too.

I'm disappointed that I missed your post before but pleased I've found it now!

Not what you're looking for?

You may also like...

Does anyone know about SIBO, osteoporosis and B12 deficiency ?

Breath Test for SIBO (small intestine bacterial overgrowth) result produced this from Haematology......
Cherylclaire profile image
Forum Support

Anyone know a frontline NHS worker who has B12 deficiency - and would like a portrait?

I heard about the artists who are offering free portraits to frontline NHS workers, as a means of...
Cherylclaire profile image
Forum Support

Is there a link between dry eyes and b12 deficiency? If not, has anyone else had any atypical symptoms related to low b12?

After a year of having low b12 I have finally been given permission to get b12 injections! They...
Ctb567 profile image

Pernicious anemia and Vitamin D deficiency, can anyone tell me if I can buy B12 over the counter so I can inject myself ?

Hi there can anyone tell me if I can buy B12 over the counter so I can inject myself ? I currently...

Hi, I am Developing a device for detecting B12 deficiency. I would like to know about the devices that are available for diagnosis at home.

Devices that had been used before or are being used now to detect the amount of Vitamin B12 present...
AvisekBarla profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.