Advice please : So long story short... - Pernicious Anaemi...

Pernicious Anaemia Society

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Advice please

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So long story short loading b12 doses in jan due to low store levels 148, not Pa as tests negative, horendous side effects after injections which 10 weeks on have slowly resolved apart from increased heart rate in past 2 weeks, prior to this heart rate had settled, was diagnosed with uti around 10 days ago which had no symptoms for but given antibiotics, urine reading clear now but recent trip to ed as heart was tachy this was 6 days ago all bloods normal and ecg normal, tachy continues throughout day and dry mouth along with peeing alot, and bouts of fatigue during day which then come good

Bloods - potassium 4.0

range 3.5-5.2

Magnesium 0.77

range 0.70 -1.10

Thyroid within range (on meds)

Diabetes test fine

B12 now 1200

Folate levels normal

I feel like my body is dumping sonething, my head clear now but body not ??? Any advise please, awaiting halter monitor appt

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ThePATexan

I’m sorry to hear of your difficulties. Your story sounds as though it could be a part of mine. It has been about 18 months since the most intense and severe of my symptoms began, including paralysis, hypertachycardia, the repeated dry mouth so bad you can’t swallow and so many more it sounds like you may be having too. I have several diagnoses so far, which has helped some of my symptoms improve. That doesn’t really say much considering how bad the symptoms get. I had some tests regarding adrenaline reactions done this week and should get results next week. Hopefully I will finally get in to see the Hematology Oncology Specialist, who works with POTS patients almost exclusively, about the Pernicious Anemia. I look forward to hearing of your progress and others advice for you. I can update you with any of mine if you would like. Best of luck!

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