I was eventually diagnosed with PA 3 years ago after having it for 10 years. Consequently have some nerve damage. Brain MRI showed numerous lesions and I also have peripheral neuropathy. GP is happy to precribe monthly B12 injections but I have also been experimenting with self injecting different forms weekly. Weekly injections have really improved my energy levels and reduced the brain fog etc.
Since being diagnosed I have seen gastroenterologist...knew very little about PA and said didn't need any monitoring for gastric carcinomas... and a neurologist, who also knew very little about PA but did give me a thorough neurological assessment and recommended I had monthly B12 as I was obviously "very sensitive to B12". Neither had any advice about different forms or B12 how to improve my symptoms.
As an ex biochemist I was keen to discuss things with someone who knew more than I did so my GP has referred me to a biochemist who she hopes may be helpful.
I would like to discuss with them possibilities of problems in the methylation cycle and issues with B12 entering cells and mitochondria. And ask their advice about different forms of B12 for treatment regimes etc.
Does anyone have any other ideas of questions to ask?