Pernicious anemia: Hey everyone. I'm... - Pernicious Anaemi...

Pernicious Anaemia Society
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Pernicious anemia

Zenmaster6
Zenmaster6

Hey everyone. I'm new, first post. Kind of scared of all of this, I'm only 18 but my grandpa had PA and now I have it. It's been hell. People wanting me to be on ssri meds and anti anxiety but it's really all b12. Anyways. I took a sublingual b12 pill and started shaking uncontrollably with little to no anxiety. Why did this happen? Had to call 911. Heard something about potassium.

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clivealive
clivealiveForum Support

Hi Zenmaster6 are you in the UK?

If you have been diagnosed with P.A. sublinguals will be no good for you - why has your doctor not prescribed B12 injections?

Please supply some more details about yourself so that the "night owls" can advise you as it's my bedtime now.

Be assured that with the right treatment there is life after P.A. as I've had it for 46 years and I'm still "clivealive" and 77 years of age.

I wish you well

Hi,

Have you considered joining the Pernicious Anaemia Society? They can offer support and info about PA.

PAS (Pernicious Anaemia Society)

Based in Wales, UK but has members around world.

pernicious-anaemia-society....

PAS tel no +44 (0)1656 769717 answerphone

PAS support groups in UK

pernicious-anaemia-society....

B12 Deficiency Info website (some info may be UK specific).

b12deficiency.info/

B12 Awareness (USA website)

b12awareness.org/

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society). Book is up to date with UK b12 guidelines.

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies. There is also a pediatric version of this book "Could It Be B12? Paediatric Edition: What Every Parent Needs to Know".

More B12 info in pinned posts on this forum.

I hope you find the help you need.

I am not medically trained.

The folks here are a great resource. But if you want guidance it will help to do as clivealive suggested and provide more info such as where you are and how you were diagnosed with PA. Sublingual B12 should not have that kind of effect if you have PA as you would only absorb a tiny amount through the skin in your mouth. I had some weird reactions to the shots - including shakiness. I am attributing that to the system shock of suddenly having a lot of B12. If you have been diagnosed with PA you would normally be getting B12 shots.

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