Pernicious Anaemia Society

Feet pain

Hello!

I live in the netherlands and have a question. For about four years i have pain in both Feet and Burning sensations most in My legs. IT starter after My labour. I have been on b12 injections now because they think iT is worth trying. Not because My levels were that low. I get more pins and needles in My Feet. Is this a good sign? I am very insecure about iT because iT is feeling worse. Sorry for My bad english ;/)

8 Replies
oldestnewest

Hi,

There is a Dutch B12 website with some interesting articles.

stichtingb12tekort.nl/

There are also B12 cafe meetings in Netherlands.

stichtingb12tekort.nl/helpe...

" IT starter after My labour"

Did you have "gas and air mix" (gas en lucht) during labour? Gas and air mix is used to relieve pain in labour and it contains Nitrous Oxide. Nitrous oxide can inactivate the B12 in a person's body.

gov.uk/drug-safety-update/n... (UK link about nitrous oxide)

UK B12 websites

PAS (Pernicious Anaemia Society)

Based in Wales, UK but has members from around the world.

PAS offers support and info about PA.

pernicious-anaemia-society....

PAS tel no +44 (0)1656 769717 answerphone

B12 Deficiency Info website

b12deficiency.info/

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society). Book is up to date with UK b12 guidelines.

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies. There is a Dutch translation of this book available.

B12 Deficiency Symptoms (symptomen van B12-tekort)

pernicious-anaemia-society....

b12deficiency.info/signs-an...

Risk Factors for PA and B12 Deficiency (risicofactoren voor B12-tekort)

pernicious-anaemia-society....

b12deficiency.info/what-are...

b12deficiency.info/who-is-a...

"Not because My levels were that low"

It is possible to have the symptoms of B12 deficiency even if B12 levels are within normal range.

Misconceptions about B12 deficiency (B12 misvattingen)

stichtingb12tekort.nl/weten...

I am not medically trained (Ik ben niet medisch opgeleid). I hope you get the help you need.

1 like
Reply

Hi. I have these feelings you describe often. Until I came across this forum I used to worry a lot about it but I realised I'm not alone now. I've upped my b12 injections and I've started to feel I'm improving. Good luck the websites references are really informative x

2 likes
Reply

your English is fine - and certainly a lot better than my (non-existent) dutch. If you have just started treatment then it is quite common for things to feel a bit worse before they start to get better. One of the effects of lack of B12 is that nerve signals get weaker - so you get B12 and the signals get stronger but the brain takes a while to adjust - I think of it as being like listening to a weak FM/AM/SW radio signal - you turn the set right up so you can hear it and then the signal comes through stonger and it is deafening, until you manage to reset the volume.

Serum B12 is the normal test for diagnosing B12 deficiency but it isn't very sensitive and misses 25% of people who are B12 deficient if it is used as a single marker so symptoms become important.

you can find a full list of symptoms here - worth ticking of all that apply - even if they have been a round for a lot longer - a full B12 deficiency can take years and even decades to manifest - and follow what changes over time

pernicious-anaemia-society....

1 like
Reply

Thank you All for the replies! I appreciated iT a lot. I have been taking injections for five months. Is this stil repairing? I have never had numb Feet.

Reply

I’ve had terrible pain in my feet in the past but generally much better now. I used to say it felt like I was walking on my bones. Lots of B12 and a healthy diet has helped. Find avoiding wheat helped and I am pretty sure when I drink alcohol it gets worse.

Reply

Thank you!! Novice pa ! That is exact the same feeling, walking on bones. Did you also have other pains ?

Reply

Suggest having a read of this overview of burning feet:

racgp.org.au/afp/200312/200...

Don't kiss things like erythromelalgia.

Reply

Hi Myemmy80 I too suffer with burning feet and legs especially at night but the I've had P.A for 46 years, am diabetic and 76 years old so the cause could be any one of the three.

Reply

You may also like...