I’ve just posted this on the thyroid forum that I’m usually resident on but I thought I’d also post on here. I hope that’s ok.
So I’m desperation having tried all suggestions and looking around this and the PA forum I emailed Dr ****** to see if he though my problems could be B12 related.
At 8.30 last night he called me as reading my history he really thought he could help me. After a good 30 minuets going through my history and although I have had a “normal”(yeh yeh I know!) short synacthen test he seems to think I could have secondary adrenal failure as my 9am cortisol was 268 and I actually only got to just over 550 after the 60 minuets.
He’s sending me a list of tests he’d like done. I’m pretty sure I’ve already got results for over the last few months so hopefully won’t need repeats but what’s 1 more blood test!
I’ve read a lot of very good things about him and wondered if anyone else had been helped by him? I really don’t want to get my hopes up that he’ll find an answer but I’m now getting desperate.
If you have was your own gp ok about it? Mine is now at a loss at what to do with me but I have a very good gp and don’t want to risk the good relationship we have x
Written by
Emyloulou
To view profiles and participate in discussions please or .
Dr ****** is a wonderful doctor who put his patients before his career. He knows what a wonder vitamin B12 is and the deficiencies we can have if it's not optimal.
Because he was so successful the NHS withdrew his licence. Dr ********* is another doctor who was pursued for treating hypo patients due to their clinical symptoms and he also was pusued and resigned his licence although he give plenty of advice to patients since then. Even though he's been quite ill himself.
Thank you, over the past few days I’ve done a lot of research about him and the fabulous work he has done. I finally feel I might be getting somewhere after speaking to him, just hope my own gp agrees 🤔 xx
My gp has been fantastic in fairness just not able to think quite as much out of the box I think. Dr ******** has said he will need my gp to do some bloods so I’m going to have to confess I think. The ones he wants are way out of my price range to have done privately x
Is that because he was prepared to think outside the box and put patients first though or because he was a danger?
At this point I’m prepared to take the chance. Like with everything we have to use common sense and if he tells me to eat eye of newt or dance naked at midnight I may say no but if he sees something everyone else has missed it’s worth a go.
Dr ******** is a inspirational man who has many many years of experience in B12 issues he has put people first and suffered the consequences. I too have had marvelous advice from this genuine man. I do hope he receives recognition for his work. He and his small group fund b12 from their own finance to provide support to those who need it. He has appeared on BBC television in relation 5 his work with B12.
Emyloulou. For clarification on Hidden 's comment...If we are thinking of the same recent incident, what this medical practitioner did was unprofessional (at best), not to mention dangerous.
He told somebody who had been diagnosed with MS, following MRI scans, multiple tests and neurological consultations, that they did not have MS, but had B12 deficiency instead.
Goodness only knows how this can be determined via one telephone call and no access to appropriate tests, scans and associated data.
Thank you, I read Eaozs comment as he DID diagnose MS over the phone. Either way as you say a phone conversation can’t diagnose or undiagnose any condition and I appreciate your concern x
Yes...Eaoz did say that...whether he's done that too...no idea. But certainly, the case of which I speak is quite recent.
I do understand that B12 deficiency is sometimes misdiagnosed as MS, but if that was suspected to be a possibility, then that was surely not the way to deal with it.
I can only imagine how hopeful and potentially confused and distressed the person must be.
If this is my case you're talking about Foggyme , just to clarify, I'd agree that the doctor in question was unprofessional to say that I do not have MS, but he didn't quite have 'no data' as Hidden states above - I'd emailed a quite detailed history of my symptoms (many of which are very suggestive of B12 deficiency) and my clinical situation as well as blood results and what the neurology consultant had told me.
And I have to say that his advice (although taken with a pinch of salt because it did feel very unlike the tone of a doctor) was part of what kept me going to keep pushing for B12 treatment from my GP, which I am now getting
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Addisons disease
The Future looks Bleak
Halo test. 
Going To Self Inject -Questions 
