Hi Everyone, and thank you in advance.
I recently had the good fortune of seeing a new GP at our surgery, omg what a breath of fresh air. She listened and looked at my pre/post and current history. All of which lead her to believe I have a "real" problem going on.
For years my original GP has just tested for my hypothyroid condition and ignored everything I have told him, to the extent that he told me to "go get some sun" I did not know whether to scream or cry.
The new GP ran loads of test especially for IF, B12 etc. when all the tests came back she was uncertain so she actually passed all my details to a haematologist for advise, a GP who actually admits she doesn't know everything !
The haematologist advised B12 at 3 monthly intervals, of which I have had my first. Also advised that although my IF was negative, the test is not effective. The new GP told me I have pernicious Anaemia (without a positive result but all the symptoms and family history confirm it).
She said I have Auto Immune Disease and she actually apologised that I had not been treated correctly, she even went so far at telling me to find another GP, to my shock and despair she is leaving. She told me many of my other problems may all be linked to this i.e. hypothyroidism, parathyroidism, spine & neck problems could be Ankylosing spondylitis.
The new GP told me that "my quality of life" is not very good and the possibility of further health issues must be monitored.
I am off to have pain block injections in my neck and lower back on Monday, I had a replacement disc at C5/C6 almost 2 years ago, but the pain has never abated. I am asking my pain management consultant on Monday to refer me to see a specialist in immunology.
I now feel abandoned, given a poor prospect for my future health and as its such a vague and relatively unknown condition the lack of understanding, care or empathy is non-existent.
Thoughts, comments or just some kind words would all be appreciated.