Hi I have come from thyroid forum. I am from the UK and tested positive for intrinsic factor. My symptoms are very odd - pins and needles in feet and legs, dry skin, pain in joints and in fingers, dark circles under eyes, vitiligo, hair loss, tiredness, depression, anxiety, dizziness, feeling unsteady, flatulence, heavy periods, weight gain, cold hands and feet, flaky nails. If anyone could help advise I would be grateful. Thank you
OCT 2017
Ferritin 45 ng/L (30 - 400) diagnosed iron deficient 2013, nothing taken for it
If you are based in the UK then your B12 treatment is not in accordance with current standards for treating an absorption problem - you should have been on loading shots 3x weekly until your symptoms stopped improving (with review at 3 weeks) and then on 2 monthly maintenance doses (as you have neurological symptoms.
Please refer your GP to the BCSH guidelines on diagnosis and treatment of cobalamin and folate deficiency which can be accessed via the BNF by a UK GP but can also be accessed here by anyone in the UK
if the reason your GP gives for not treating in accordance with the above is that you didn't have any macrocytosis then point out to him that the standards say that 25% of people who are B12 deficient present without macrocytosis and also state that in the presence of neurological symptoms prompt and correct treatment is needed to prevent neurological damage becoming permanent.
It looks like once you were given the shot your body used the folic acid and iron it had. If you get more shots and take some folic and iron your body will begin methylation and make new healthy red blood cells. This should improve how you feel.
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