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Pernicious Anaemia Society

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Advice please

annejo_c profile image
2 Replies

I am from UK and from thyroid forum should I be taking anything thanks

B12 101 (180 - 900)

Folate 2.1 (4.6 - 18.7)

Ferritin 8 (15 - 150)

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annejo_c
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Lisahelen profile image
Lisahelen

Personally, i think with results like that, which are all way under minimum let alone anywhere near optimum which would mean you should be at the very least half way up the reference scale, you should be visiting your gp and getting treatment.

Take a look at the pinned posts which will give you advice.

clivealive profile image
clivealiveForum Support

Hi annejo_c symptoms of B12 deficiency tend to develop slowly and may not be recognised immediately. As the condition worsens, common symptoms include:

Weakness and fatigue

Light-headedness and dizziness

Palpitations and rapid heartbeat

Shortness of breath

A sore tongue that has a red, beefy appearance

Nausea or poor appetite

Weight loss

Diarrhoea

Yellowish tinge to the skin and eyes

If low levels of B12 remain for a long time, the condition also can lead to irreversible damage to nerve cells, which can cause the following symptoms:

Numbness and tingling in the hands and feet

Difficulty walking

Muscle weakness

Irritability

Memory loss

Dementia

Depression

Psychosis

If you have any neurological symptoms make a list of them and present this to your doctor and ask him to treat you according to your symptoms and (perhaps) even start you on loading doses "until there is no further improvement" according to the N.I.C.E guidelines below. Click on the link, then on "Scenario: Management" and scroll down to "Treatment for B12 deficiency"

google.co.uk/url?sa=t&rct=j...

If possible take someone with you who can validate your neurological symptoms as the doctor is less likely to pooh pooh you in front of a witness.

I am not saying that this is an easy thing to do but try to stay calm, write out what you want to say and keep to the script and be confident that you are "in the right" and your facts are correct.

It is also important that your Folate level is monitored as this is essential to process the B12.

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

Symptoms of a folate deficiency can include:

symptoms related to anaemia

reduced sense of taste

diarrhoea

numbness and tingling in the feet and hands

muscle weakness

depression

Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body.

Having thyroid problems increases the risk of developing a vitamin B12 deficiency.

I'm not a medically trained person but I've had P.A. for over 45 years and I wish you well.

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