Hope you are all having a good weekend. I took everyone's advice on here and did a detailed letter to the GP about my diagnosis of B12 deficiency and lots of examples on why my B12 result could be coming back in lower range, problems with the IF test and why I'm showing no macrocytic anaemia maybe because of iron deficiency anaemia.
I sent the letter to the GP and had a phonecall back to say they would be discussing my case at their next GP meeting. I was a little bit hopeful after that.
Now this morning Iv'e had a letter from the neurologist saying my recent B12 test was
874 ng/l 197 - 771. I really don't understand why it is so high as I have stopped all supplements at the moment. The intrinsic factor was negative again. She says of course this goes against a diagnosis of PA. She did agree to an MRI of the spine which is next week.
I'm really disappointed with this as I was planning on getting an Active B12 and MMA test to see if I could clarify anything but seems no point when my B12 is showing that high.
I'm doubting myself again now. I do have a Thyroid issue too and it seems this condition has similar symptoms. My neurological symptoms are brisk reflexes, cognitive decline, left upper limb dyspraxia occasional tingling in feet. My walking is affected now and I trip it is like foot drop I think and feel dizzy and lightheaded.
The only other diagnosis mentioned to me was Fibromyalgia so far which I don't agree with. I think this neurologists letter is probably going to affect the GP decision.
Could anyone please give me advice or thoughts please.