Since I was a child I struggled to keep my rbc in the normal range. I often had different neurological symptoms like migraines, occasional tingling, anxiety etc. I always had problwms with short memory and had been called forgetful. It all started about 3 years ago, I syarted to feel exremely fatigued, I would fall asleep while out for a lunch. One evening I suddenly developped tingling on the left side of the body. I have been admitted to the hospital to the ICU where I was suspected to have a stroke, fortunately CT scan came back normal. The hospital ran a battery of test of which all came back normal except my rbc that were 3.8, and lower than normal hematocrit. Fortunately they also tested vit b 12 which came back 235 (in the normal range) and folate that was 1400 (normal was all above 200). They sent me home with referral to neuro to get tested for ms. They also gave me vit b 12 pills (500 mcg), which I took, bit nothing changed. I have undergone so far 3 mri and all excluded ms, but confirmed leasions. At the same time I sustained b 12 supplementation along with d 3 for about 6 months and my level increased to 590, but the neurological sensation did not improve, quite contrary, I developped strange sensation in my mouth and throat, and blurry vision, that comes and goes.
With that level of b 12 I dropped this topic and got tested for lyme disease, which came back positive. I stayed 2 years on antibiotic treatment, which did not bring any improvement in terma of my neurological issues.
As suggested by my MD I dropped treatment and experienced terribly low immune system, At the same time I decided to go fully vegan, (however before I ate only poultry and fish - no pork of beef) I also started to loose my hair. I still was very tired, so I did cbc that reveal low rbc - 3.8 Then I started to aupplement bit b12 in 1000 mcg pills - methylocobalamin. After about 1,5 month my fatigue increased and hair loas turned in to real shedding-I can see bald spots) and I started developing palpitations (even though I am on propranolol). The results showed further dop in rbc 3.7 and increased mchc. The last factor has been increased several times in my life before. My MD also tested my iron, that came back normal with low ferritin levels 17.
The dosctor said I pop some iron pills but otherwise I am fine. He is very reluctant to do anything.
Watching movies about b 12 deficiency O also realised that my grandmother took the injectiona but not throughout her life. She died of alzheimers. My son is diabetic and my mom has Hashimoto. Is it possible to have PA if once in my life my levels went up on the pills? About 6 months ago I also tested homocysteine that was 6 - ok. Is it possible to have b 12 deficiency with nirmal homocysteine level?
I am sorry for a very long post, but no doctro so far has been able to help me (and there were dozens of them)
Thank you in advance