So ...after many years of symptoms, a massive decline after general anaesthetic 9 weeks ago,a family history of PA, being diagnosed with numerous things....ME, tri geminal neuralgia, functional neurological disorder, anxiety, depression, heart damaged by radiotherapy in the past etc etc.....
FINALLY I got some news!!!! I chose to have a private homocysteine blood test ( GP refused..he doesn't believe me as pre op B12 was 402 and Intrinsic factor was 1) and it came back as high (19) bordering VERY high! And what is the suggested treatment ? B12 supplements !!! I am shocked and disgusted I had to persue this avenue myself as it means I am high risk for heart disease, alzheimers, stroke etc now. 😨
Thank heavens I took the decision to SI 12 days ago! I feel some slight improvement already.
I rang my GP straight away and said I wanted lipid testing immediately. .to which he agreed, I wanted them to fund my treatment, I wanted an apology and I would be putting it all in writing over the weekend.He also said he didn't know anything about homocysteine at all ! (Nor did I mate until I was forced to do some research) He has agreed to a meeting next week after he and his partners and the practice manager have "digested" the letter!
I am scared now to be honest that I have such a high risk of coronary artery disease and stroke, and hope the SI will quickly bring it down😯
Not to mention all the vast host of other symptoms I have. I'm so relieved to have a piece of paper that vindicates me....but so so hurt and angry at the label that's been given me over the last few years. Only 2 weeks ago the same GP told the practice nurse I have an "acute anxiety syndrome " What the heck ???
Sorry for the long rant ! It's 4 am here and I'm so cross I can't sleep ! I don't know where or how to begin my letter to the doctors .I feel vindicated, a sense of triumph, but an over whelming sense of sheer frustration at the events of the last 3 years and the detective work it's taken me to get to this point. I truly believe that if I hadn't made the decision to SI, I was going to die. I'm not being melodramatic, it has been that bad😩