This is my first post from Australia, after having been diagnosed with PA in January 2017.
This comes 18 months after completing chemo and radiation treatment for breast cancer. Looking at the PA symptoms I tick many of the boxes and yet I kept thinking they were post chemo and or tamoxifen side effects, so a new diagnosis surprised me but explained a lot. I have had a monthly injection for the past two months and another due next month. My fatigue, balance and mind are still struggling with little improvement. If I undertake light exercise it almost wipes me out. It is unclear why some people seem to receive regular injections initially and then monthly whereas others receive monthly? It is also unclear whether exercise should be limited until your levels improve or if exercise can in fact help you push through your fatigue?
My level was 130 when diagnosed. I live in Australia. Any suggestions re exercise and a more regular injection regime would be most helpful. I am 60.